Wisconsin Resources
Down Syndrome Clinic – Children’s Hospital of Wisconsin
The Down Syndrome Clinic is committed to improving the health and well being of children and adults with Down syndrome, which may include complex issues. This requires a comprehensive, multidisciplinary health care approach. The DSCW is connected with a statewide network to assist families in need.
Birth to Three is Wisconsin’s early intervention program for infants and toddlers with developmental delays and disabilities. Through it, your child will receive (in most cases) in-home physical, occupational and speech therapy depending on his or her needs, often at little-to-no cost to your family.
For new and expectant parents of babies with Down syndrome, we offer up-to-date resources (Expectant Parent Packs and New Parent Welcome Baskets), and the opportunity to connect with other parents who have had similar experiences.
1-866-327-3729
Katie Beckett Program Supplemental Insurance
Children born with DS often experience medical complications at birth, many of which today are corrected with routine procedures. In addition, children with DS will benefit from physical, occupational and speech therapy in their first months and years. The Katie Beckett Medicaid program can cover costs that insurance plans sometimes will not.
DSAW Member Grants and DSAW Meal Assistance Program
DSAW offers Member Grants for DSAW Members to help offset the cost of items or services that can benefit the quality of life and development of a person with Down syndrome. In addition, for families who are experiencing an extended hospital stay at Children’s Hospital of Wisconsin in Milwaukee, we offer meal vouchers for family members
The mission of WI FACETS is to provide and broaden opportunities that enhance the quality of life for children and adults with disabilities and their families, with emphasis on support for underserved families in the community.
National Resources
National Down Syndrome Society
The National Down Syndrome Society (NDSS) is the leading human rights organization for all individuals with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
National Down Syndrome Congress
The mission of the National Down Syndrome Congress (NDSC) is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.
Global Down Syndrome Foundation
The goal of the Global Down Syndrome Foundation is to significantly improve the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. Global works to educate governments, educational organizations and society in order to affect legislative and social changes so that every person with Down syndrome has an equitable chance at a satisfying life.
