Down Syndrome & Aging/Alzheimer's
Thanks to support from Bader Philanthropies and many community partners, DSAW is expanding programs in order to better serve individuals who have both Down syndrome and Alzheimer's disease/dementia and their families. We have support opportunities for loved ones and caregivers, a number of education opportunities, resources, and more. If you have any questions about this program, please contact Rachel at firstname.lastname@example.org.
To stay up to date on all that we have to offer, click the button below to join our email list.
We are here to offer aging individuals with Down syndrome and their caregivers support. Our Memory Cafes are in-person fraternal events where loved ones and families can get together, share their stories, and learn more about Down syndrome and Alzheimer’s. Stay tuned for upcoming Memory Cafe dates!
ONLINE CAREGIVER SUPPORT
We have a private Facebook group for caregivers of people with Down syndrome who are going through the aging process. Join that network of support by clicking the button below. We will also be launching an interactive, virtual caregiver support session with educational components and a chance to talk with others around Wisconsin. More information on that coming soon!
Want to learn more about aging in people with Down syndrome? Curious about the relationship between Down syndrome and Alzheimer’s disease, its common over-diagnosis, and ways that we could potentially improve cognition in older adults with Down syndrome? We offer several means to learn about these topics!
Whether you are staff at a nursing home, day program center, resource center, or another nonprofit, we offer provider trainings on Down syndrome and aging. Trained DSAW staff will come to your workplace to share about the common links between Down syndrome and Alzheimer’s in addition to misconceptions, symptoms to look for, and more! Email Rachel at email@example.com to schedule a training.
DSAW works with national leaders in the Down syndrome/aging field to coordinate a Speaker Series related to Down syndrome and aging/Alzheimer’s disease. Join us at one of our upcoming conferences or seminars about this important topic!
We have a library of educational webinars presented by professionals in the field of aging, disability, and dementia. Topics include an introduction to dementia, the latest research in Down syndrome and Alzheimer’s, pseudo-dementias in people with Down syndrome, and more. Watch recordings of these webinars from the comfort of your own home by clicking the button below!
DSAW Aging Nursing Care Tips Sheet: Tips for finding, interviewing, choosing and becoming eligible for placement in a nursing home
Alzheimer's Association, Online Community Resource Finder: Providing housing, medical and community resources for caregivers of someone with Alzheimer's and dementia
Alzheimer's Association: Works on a global, national, and local level to provide care and support for all those affected by Alzheimer’s and other dementias
Wisconsin Alzheimer's Institute Memory Clinics: These WAI-Affiliated clinics offer screenings and comprehensive evaluation for early diagnosis
Mind and Memory Matters Project: Providing support around the state and educating families/professional caregivers on the connection between Alzheimer's and Down syndrome
Dementia Resource Guide Book: For individuals with developmental disabilities and their caregivers
Alzheimer’s Disease and Down Syndrome: A practical guidebook for caregivers
Alzheimer's and Dementia Alliance of Wisconsin: Local, professional help to those caring for and living with Alzheimer's and dementia.
NTG-EDSD Screening Instrument: The National Task Group's Early Detection Screening Tool to identify early signs and symptoms of dementia in adults with intellectual disabilities
What is Dementia? Booklet: A booklet designed by Down Syndrome Scotland to explain dementia to people with Down syndrome and other learning disabilities
Talking About Dementia: A guide for families, caregivers, and adults with intellectual disabilities: A book offering guidance about how to talk to your loved one about dementia
Aging and Down Syndrome: A Health and Well-Being Guidebook: A guideline for living with Down syndrome and Alzheimer's from the National Down Syndrome Society
Video: Dementia and People with Intellectual Disabilities: Created by the New York State Developmental Disabilities Planning Council
Video: Alzheimer's Disease and Down Syndrome: An NDSS Inclusive Health and Sport initiative webinar
Down Syndrome Brain Train: Video series in which Dr. Brian Skotko teaches how you might boost cognition and prevent Alzheimer’s disease for a loved one with Down syndrome
Book: Alzheimer’s Disease and Dementia in Down Syndrome and Intellectual Disabilities. Prasher, V. P. Radcliffe Publishing. (2005)
Book: Mental Wellness in Adults with Down Syndrome. McGuire, D. and Chicoine, B. Bethesda, MD: Woodbine House. (2005)
All Wisconsin Memory Cafes: A directory of all memory cafes in Wisconsin
National Down Syndrome Society Alzheimer's Disease & Down Syndrome: NDSS's informational page and resources
Alzheimer's Disease International: Global information related to Alzheimer's, including a range of publications
Alzheimer's Foundation of America: Unites more than 2,600 member organizations nationwide in the goal of providing optimal care and services to individuals living with dementia and to their families and caregivers
Diet & Alzheimer’s: Research by Sofrizzi et al (2017)
Atlas of Caregiving: Atlas CareMaps help you better understand and strengthen your care ecosystem