Looking Back on August 2020
August was another busy month for DSAW! We hosted our first in-person fundraising event since March and developed a whole new menu of DSAW Connects programming for fall! It is also less than a month until Walk Day across the state! Read on to see what we’ve been up to.
24th Annual Pip & Homer Golf Outing
On August 12th, DSAW hosted our 24th Annual Golf Outing! This was our first in-person event since March. DSAW has been greatly impacted by the pandemic, so it was more important than ever for us to reach our fundraising goal at this event. That meant adapting the day and activities to be socially-distant and safe for volunteers, self advocates, and event attendees.
The event took place at Western Lakes Golf Course in Pewaukee and was full of the usual activities: putting contests, golf games, raffles, a paddle auction, and of course lots of golf! This was DSAW’s first event that incorporated GiveSmart technology to make giving easier for our guests. DSAW hosted a socially-distant program afterwards and announced the 1st place, “Average Joe,” and 21st place winners. Guests got a dinner “to-go” from Saz’s catering.
DSAW is so grateful to all event staff, volunteers, and attendees for coming out and making the best of this day with us. We are looking forward to throwing our usual party in 2021!
Wrap Up: DSAW Connects: Statewide Summer Programs
Our DSAW Connects Virtual Summer Classes wrapped things up on August 14th so the instructors could prepare the fall curriculum. Throughout the summer, DSAW Connects reached over 80 students of all ages from across the state every day. There were 9 DSAW Connects classes on our summer schedule (not including our free programs), many with multiple sections to accommodate all of our participants’ schedules. We consider the summer a smashing success and look forward to September 1 when fall classes begin!
Wrap Up: Free Summer Programs for DSAW Families
The Stream Team!
Here’s what a few of our groups were up to in August:
Mom’s Coffee/Book Club
On August 21st, the moms shared a lot of laughs while discussing The Lager Queen Of Minnesota by J. Ryan Stradal. The next meeting is on September 17th from 8-9 pm via Zoom. This month’s book is 28 Summers by Elin Hilderbrand.
Stream Team
This self-advocate group likes some friendly competition with games like “Name that Tune” and “I Spy.” We start class with a “Question of the Day” and at the end of each class, the participants watch a music video for “Song of the Day” and it’s a blast listening to friends’ favorite tunes.
Tween Stream Team
These tweens love talking to each other! Their favorite game is “Would You Rather” and they like to catch up about which TV shows they’re all watching. This class is a great break in the day from content-based classes and it lets the participants just relax and catch up with their friends in a structured way.
Grandparents Group
DSAW- Grandparents Group has expanded statewide! You can join this lovely group of grandparents at any time and stay connected with them through the new Facebook Group. In August, the group enjoyed a virtual chat with self advocate speaker, Tim Harris! The DSAW Grandparents Group has continued to donate baby toys, socks, and other items to the Parent’s First Call Program throughout the summer.
DSAW Connects: Statewide Fall Programming Announced
Registration launched for our DSAW Connects: Statewide Fall Programming! The fall section of DSAW Connects runs September 1 through December 18.
DSAW is thrilled at the success of our DSAW Connects program and is excited to offer new classes and old favorites during fall.
We also have a whole menu of FREE, Statewide Fall Fraternal Programs for our friends with disabilities, parents/caregivers, grandparents, families, expectant parents, and more!!
Update: Virtual 21 Showcase
Submissions for the months-long 21 Showcase on social media are due by September 20th! We’ve received amazing submissions from all over the State and we want to see more. We love celebrating all of our friends with Down syndrome and related disabilities virtually.
Submit a photo/video and description of your loved one to be shared on our Facebook page! Help us prepare for the Walk by celebrating all of our friends online.
Down Syndrome Awareness Walks
There is still time to register and launch your team for DSAW's Down Syndrome Awareness Walks across the state! Due to the uncertainty regarding the COVID-19 pandemic and the crowd size at our Awareness Walks in the past, DSAW's Awareness Walks will look different this year in that they are going mostly virtual!
We are hosting awesome virtual activities all month long, a virtual program on Walk Day (September 27th), and some locations are examining exciting, local meet up opportunities such as a giant car parade or a physically distant Awareness Walk - check out your chapter's Walk page to learn more.
Note: the 8/28 t-shirt deadline has passed. You can still purchase Awareness Walk t-shirts through your chapter's Walk website, however your order is not guaranteed to arrive by September 27th. Thank you!
Register for an Awareness Walk in your area today!
Social Media Fun
Wrap Up: #DSAWVirtualWalk Weekly Challenges
DSAW posted weekly giveaways on Facebook all summer long! The last challenge ran from Friday, August 21st until Friday, August 28th. Whichever Walk Team raised the most money by the 28th would receive a $100 gift card to a local business. DSAW’s friends at Abby Bank sponsored this challenge. During these last 3 months, so much fun was had and DSAW achieved so much. We thank walk participants, our sponsors, and our Facebook following for making the Weekly Challenges successful and lots of fun.
Here is a BRIEF summary of all the amazing things we did during our Weekly Challenges from June-August.
Raised $30,000 during the last week of #DSAWVirtualWalk Weekly Challenges (all Chapters and MADSS)
Decorated our cars, homes, and offices with DSAW and awareness colors
Supported multiple local businesses across the state of Wisconsin and delivered weekly prizes to our winning participants
Inspired 203 people to share our Walk posts on social media, expanding our networks and getting the word out about the DSAW Walks
Received submissions from DSAW families and self advocates letting us know what DSAW means to them
Crushed our fundraising goal of $15,000 in one week so we could watch our Executive Director get “pie-ed” by her daughter on Facebook Live
Listened while Self Advocates shared how they exceed expectations
Welcome: September Daily Activities
As Walk Day gets closer, DSAW will post fun and simple daily activities on our social media to help families participating in the virtual Walk to feel connected to each other. Please check out the graphic to see what’s in store for September, and join in the fun on Facebook!
Looking Back on July 2020
DSAW Walk season is in FULL SWING! The DSAW community has been busy forming teams, participating in weekly social media challenges, and raising funds in all kinds of crazy and fun ways! As the Walks gained momentum, we were also busy planning the Annual Golf Outing in Southeastern WI which will be our first socially-distant, in-person event since March! DSAW Connects classes continue for a few more weeks before we switch it up again with new programming. Read on for all the details!
DSAW Connects: Statewide Summer Programs for All DSAW Chapters and MADSS
Our DSAW Connects Virtual Summer Classes continued through July! Over 80 students of all ages from across the state participate every day in DSAW Connects classes and many of our classes have multiple sessions to accommodate all schedules.
Click here to learn more about our paid summer classes.
Here is what a few of our programs have been up to over the last month!
DSAW Connects: Media Madness
We are teaching future tech wizards in this class! The class has covered the basics of Google Drive usage and discussed the ins and outs of social media safety during July. We’ve had conversations about what to do about scam calls and other relevant media safety skills. We make time for fun too by watching popular music videos at the end of class.
DSAW Connects: Let’s Get Connected!
We are learning how to make new friendships while strengthening current relationships during Let’s Get Connected! This class uses videos as a tool to promote conversation among the group. We’ve had awesome conversations this month about friendship!
DSAW Connects: Move & Groove
We are keeping active and fit throughout the summer season! This class fits a lot in a short amount of time! Participants learn routines to popular music and have check-ins with the instructor between songs so they can talk about wellness.
DSAW Connects: Creative Corner
The takeaway from Creative Corner is that art is all around us! Participants have made a lot of animal-themed art projects this month. They have also had great discussions about self- expression.
Free Summer Programs for DSAW Families
The Stream Team!
Here’s what a few of our groups were up to in July!
Mom’s Coffee/Book Club
In July, 6 moms shared a lot of laughs while discussing The Immortalists by Chloe Benjamin. The next meeting is on August 21 from 8-9 pm via Zoom. This month’s book is The Lager Queen Of Minnesota by J. Ryan Stradal.
Stream Team
This self-advocate group likes some friendly competition with games like “Name that Tune” and “I Spy.” We start class with a “Question of the Day” and at the end of each class, the participants watch a music video for “Song of the Day” and it’s a blast listening to friends’ favorite tunes.
Tween Stream Team
These tweens love talking to each other! Their favorite game is “Would You Rather” and they like to catch up about which TV shows they’re all watching. This class is a great break in the day from content-based classes and it lets the participants just relax and catch up with their friends in a structured way.
Grandparents Group
DSAW- Grandparents Group has expanded statewide! You can join this lovely group of grandparents at any time and stay connected with them through the new Facebook Group. They have some exciting speakers planned for the group!
Virtual 21 Showcase:
This year, we are running a months-long 21 Showcase on social media, which launched during July! We’ve received amazing submissions from all over the State and we want to see more!
Submit a photo/video and description of your loved one to be shared on our Facebook page! Help us prepare for the Walk by celebrating all of our friends online.
Down Syndrome Awareness Walks
We launched registration for all of DSAW's Down Syndrome Awareness Walks across the state! This year, we are throwing a party like NEVER before! Due to the uncertainty regarding the COVID-19 pandemic and the crowd size at our Awareness Walks in the past, DSAW's Down Syndrome Awareness Walks will look different this year in that they are going mostly VIRTUAL!
If you thought you had fun with us on one day, get ready for our months-long celebration of our friends with Down syndrome!! DSAW families from around the state will be uniting with us to celebrate Down syndrome awareness ALL SUMMER LONG. Each chapter has its own fundraising page, so find your location below to get started!
Register for an Awareness Walk in your area today!
#DSAWVirtualWalk Weekly Challenges
DSAW has been posting weekly giveaways on Facebook since June! Registered walk participants who participate have received awesome giveaway prizes for growing their walk teams, sending in videos about why they love DSAW, and promoting the Walk on social media. Most impressively, the DSAW and MADSS community came together and raised $18,695.86 in one week! The goal was $15,000.00 and in return, DSAW’s awesome Executive Director, Dawn, got a pie in the face from her daughter, Abby!
This week, we are asking participants to decorate for DSAW and share pictures of their decorated homes, cars, rooms, etc on Facebook by tagging @DSAWisconsin to connect with us and get a chance to win delivered dinner from a local restaurant! Tune in to our Facebook Live video on Friday at 2 PM to watch the live drawing! We will also announce the next #DSAWVirtualWalk Weekly Challenge during this video! Check out the DSAW State Facebook page for more info.
DSAW will continue to post weekly challenges through the month of August, and then in September, Walk Month, we will post DAILY activities for registered friends and families to participate in up until Walk Day (September 27th).
Looking Back on June 2020
DSAW kicked it into high gear at the start of June with the goal of launching a new plan for our largest fundraisers of the year - our Down Syndrome Awareness Walks! Registration has launched for all of our Walks so check them out! While we collaborated with chapters across the state to organize those, DSAW Connects began it’s summer semester of new programs, we introduced a large menu of FREE fraternal summer programs, and our Golf Outing launched! It’s been a busy summer so far!
DSAW Connects: Statewide Summer Programs for All DSAW Chapters and MADSS
Our DSAW Connects Virtual Summer Classes continue to be a huge success. We will be sad to switch over to new programming after August 14th. More than 80 students of all ages signed up from across the state, and many of the classes offered multiple sessions to accommodate all schedules.
Click here to learn more about our paid summer classes.
Here is what a few of our programs have been up to over the last month!
DSAW Connects: Media Madness
We are teaching future tech wizards in this class! The class has covered the basics of Google Drive usage and discussed the ins and outs of social media safety during June. We’ve had conversations about what to do about scam calls and other relevant media safety skills. We make time for fun too by watching popular music videos at the end of class.
DSAW Connects: Let’s Get Connected!
We are learning how to make new friendships while strengthening current relationships during Let’s Get Connected! This class uses videos as a tool to promote conversation among the group. We’ve had awesome conversations this month about friendship!
DSAW Connects: Move & Groove
We are keeping active and fit throughout the summer season! Move & Groove fits a lot into a short 1 hour! The participants learn routines to popular music and have discussions about wellbeing with the instructor in-between songs!
DSAW Connects: Creative Corner
The takeaway from Creative Corner is that art is all around us! Participants have been creating lots of animal themed works of art this month and have had great discussions about self expression.
Free Summer Programs for DSAW Families
In June, DSAW began its menu of FREE fraternal programs for families around the state, including music therapy, zumba, yoga, Stream Team, parent and grandparent groups, scrapbooking, and more!
Click here to learn more about our free fraternal programming.
In June, DSAW began its menu of FREE fraternal programs for families around the state, including music therapy, zumba, yoga, Stream Team, parent and grandparent groups, scrapbooking, and more!
Click here to learn more about our free fraternal programming.
Here’s what a few of our groups have been up to this summer!
Parents’ Night IN
This fun-loving group of parents and caregivers continues to meet twice a month via Zoom. Now more than ever it is important to stay connected (or make new connections)! We love seeing you all on these calls and get so excited when new people join!
Stream Team
This self-advocate group has been learning more about each other through fun games like “Question of the Day” and “Would You Rather?”. They’ve also enjoyed activities like show-and-tell and Pictionary. At the end of each class, the participants watch a music video for “Song of the Day” and it’s a blast listening to friends’ favorite tunes.
Tween Stream Team
These tweens love to play games like “5 Second Rule” and participate in other social activities. This class is a great break in the day from content-based classes and it lets the participants just relax and catch up with their friends in a structured way.
Grandparents Group
DSAW- Grandparents Group has expanded statewide! You can join this lovely group of grandparents at any time and stay connected with them through the new Facebook Group. They love to share adorable pics of their grandkids with each other.
The Annual Golf Outing
Our DSAW Golf Outing, will be held on August 12th at Western Lakes Golf Course! It is the most FUN Golf Outing you’ll ever attend. In addition to a day spent golfing on a beautiful course, the entire day is filled with fun games, exciting chances to win BIG prizes, delicious food, and a beautiful program. Tom Pipines, retired Fox sports anchor, and Steve “The Homer” True, sportscaster for ESPN, help us to put on this wonderful day.
DSAW is closely monitoring the COVID-19 pandemic and has plans in place to keep everyone safe at our Golf Outing this year.
Down Syndrome Awareness Walks
We launched registration for all of DSAW's Down Syndrome Awareness Walks across the state! This year, we are throwing a party like NEVER before! Due to the uncertainty regarding the COVID-19 pandemic and the crowd size at our Awareness Walks in the past, DSAW's Down Syndrome Awareness Walks will look different this year in that they are going mostly VIRTUAL! We are hosting awesome virtual activities all summer long, a virtual program on Walk Day, and some locations are examining exciting meet up opportunities such as a giant car parade or a physically distant Awareness Walk - check out your chapter's page to learn more.
If you thought you had fun with us on one day, get ready for our months-long celebration of our friends with Down syndrome!! DSAW families from around the state will be uniting with us to celebrate Down syndrome awareness ALL SUMMER LONG. Each chapter has its own fundraising page, so find your location below to get started!
Register for an Awareness Walk in your area today!
#DSAWVirtualWalk Weekly Challenges
Starting at the end of June, DSAW began posting weekly challenges as a part of the DSAW Virtual Walk! This week, we are asking participants to share their Walk on social media! You can link to a Facebook fundraiser, share a DSAW post, or post the link to your team. Use #DSAWVirtualWalk or tag @DSAWisconsin to connect with us and get a chance to win a State Fair Wisconsin Products Pavilion gift package! Tune in to our Facebook Live video this Friday at 2 PM to watch the live drawing! We will also announce the next #DSAWVirtualWalk Weekly Challenge during this video! Check out the DSAW State Facebook page for more info.
Looking Back on May 2020
Just because we are still staying safer at home doesn’t mean we haven’t been busy! We still got to see our friends from around the state in the month of May. Our spring session of DSAW Connects comes to an end this month and DSAW Connects: Statewide Summer Programming begins on June 1st!
Statewide
Covid-19 and Down Syndrome Webinar
MADSS hosted a webinar led by Amy Lyle, MSSW, APSW and Maria Stanley, MD called “COVID-19 & Ds: The Knowns, Unknowns, & Tips for Survival.” The webinar was well attended and covered the current status of the pandemic, and how it affects individuals with compromised immune systems or serious health conditions. The recording of this webinar can be accessed from the DSAW COVID-19 Resource Page.
DSAW Webinar Series Presents:
The DSAW Webinar Library holds recordings of all past DSAW webinars such as the April webinar “Behavior Basics.”
Mark your calendars for the upcoming summer webinars: “Healthy Students with Down Syndrome: All the Medical Updates that Parents & Educators Need to Know” on June 5th, “Toilet Training for Every Child” on June 17th, and “Advocacy in Wisconsin” on July 15th!
Wrap Up: DSAW Connects: Virtual Class Series
Throughout the spring, DSAW Connects offered 11-13 classes each day for Southeastern WI and the Madison area. Two of the programs had multiple class sections to accommodate participants’ schedules and ages. Some are offered completely free! We are continually working to make our online programming just as accessible and individualized as our “in-house” programming.
MADSS Life Skills and Laughter
This group accomplished so much during May! They developed daily goals like learning new signs, keeping up with the news, and practicing dance moves.
Wellness & Workout
A daily exercise program that helps participants get moving! We explored a variety of workouts throughout the month like yoga and dancing. This class also discusses the benefits of movement, healthy lifestyle habits, and nutrition.
Life Skills & Laughter
This class provides an interactive way to sharpen our everyday life skills, strengthen our brains, and uplift our spirits. Class content and topics are always changing, but the goal is constantly to increase life skill knowledge!
Creative Corner
Creative Corner is about fun, art, and resourcefulness! The instructor provides participants with information about how to turn household objects into craft projects.
Stream Team
Stream Team is a fun, virtual hangout for self advocates ages 14+. This is a social hour packed with music, videos, and laughter. Our Stream Team loves Disney karaoke parties, virtual talent shows, and watching videos for “Song of the Week.” Participant’s pets have also been showing up to class:)
Social Skills
This class combines activities, games, and humor to get the group talking! A game our Southeastern group loves is “Would You Rather?” This game allows participants to share their opinions and thoughts in a structured and fun format.
Young Leaders Academy
It’s our Young Leaders Academy course… just online! This class is a continuation of the in-person classes we offer at DSAW’s office (west side) and on the east side, but we welcome new registrants as well!
Parents’ Night In
Parents’ Night In continued to be a much-needed break for parents and caregivers during “Safer at Home.” Hop on the call when you can or stay the whole time!
Parents’ Night In will continue on the second and fourth Friday from 7pm-9pm as a part of our Free Fraternal Programming. It will be open to parents and caretakers statewide.
Virtual Prenatal Diagnosis Support Group
This completely non-judgmental support group decided to meet twice a month starting in May and going forward into summer. The group is for women in various stages of their pregnancy and decision-making journey. We welcome everyone, regardless of any decisions made, to attend our judgment-free group. Join us as we gather to provide support and share our experiences. Click here to learn more about this group and to sign up.
Fox Cities, Green Bay, and Central WI
DSAW expanded the new online programming to the Fox Cities area and beyond! This series has all of the DSAW Connects content run by the familiar faces from Fox Cities that our families know and love! This fun-loving bunch started Friday Fun Days and had many themed days throughout May like Disney Day and Disguise Day.
See what DSAW- Fox Cities has been up to during their classes!
Wellness & Workout
This is the DSAW-Fox Cities “no couch potato club"!” We try different forms of exercising and movement every morning. During recent weeks, the class has been enjoying the nice weather and doing their workouts outside!
Creative Corner
Creative Corner is a relaxing and fun class that tells participants how to turn household objects (cereal boxes, toilet paper tubes, etc.) into crafts! This month participants used construction paper to craft different types of animals and did Disney themed crafts.
Stream Team
Stream Team focuses on letting the participants socialize with their peers through a variety of activities! DSAW- Fox Cities loves playing “Name that Tune!” They had another talent show in May and participants showed off their musical abilities, dance moves, and more!
Life Skills & Laughter
This content-based course has been focused on problem-solving and emotional awareness during May. The instructors used visual aids to help participants categorize example problems into different levels of seriousness. For this course, the lesson topics change every day!
Looking to Summer:
DSAW Connects: Statewide Summer Programs & Free Fraternal Programs
We can already see the incredible interest in DSAW Connects: Statewide Summer Programs! The webpage has over 450+ page visits as of its launch. Classes begin on June 1st and run through August 14th. People from any of DSAW’s chapters and from the Madison Area Down Syndrome Society are welcome! Not already connected to any of our locations? That’s okay!! All are invited.
Make sure to check out our Free Fraternal Programming too!
Looking Back on April 2020
It has been about 40 days since the “Safer at Home “ order went into place, asking DSAW and many other businesses to close their doors for the sake of slowing the spread of COVID-19. While our doors may be closed, activity at DSAW is anything but shut down!
Statewide
DSAW Connects: Virtual Class Series
Just one week into quarantine, DSAW launched DSAW Connects: Virtual Class Series and DSAW Connects: DSAW- Fox Cities Virtual Class Series! The majority of our participants are from Southeastern WI, Madison, the Fox Cities, and Central WI, but anyone from across the state is welcome to join us! DSAW seeks to provide structure, socialization, wellness, and normalcy to the participants’ days. Multiple classes are available for free, and we are seeking to expand programming options in order to accommodate an even wider variety of age groups. Classes cover life skills, social skills, wellness and more! Keep reading for more information.
DSAW Webinar Series
Continuing with the theme of online education, DSAW hosted a webinar led by behavior expert Stacy Taylor, MA, B.C.B.A early on in April. 102 people registered for this discussion about the basics of behavior and how to apply behavioral techniques to a variety of real-life situations. The webinar was recorded and will be available in the DSAW Webinar Online Library until May 11th.
Mark your calendars for the upcoming webinars: “Healthy Students with Down Syndrome: All the Medical Updates that Parents & Educators Need to Know” on June 5th and “Advocacy in Wisconsin” on July 15th!
Southeastern WI & MADSS
DSAW Connects: Virtual Class Series
DSAW Connects offers 7 programs for Southeastern WI and the Madison area. Two of the programs have multiple class sections to accommodate participants’ schedules and ages. Some are offered completely free! We are continually working to make our online programming just as accessible and individualized as our “in-house” programming.
DSAW Connects has received awesome feedback from parents. Check out a few select quotes below!
“This is an absolute SAVE for (my daughter)! This is a very positive thing for her mental health (and physical health…yay exercise). DSAW has provided an awesome response in this challenging situation!”
“GREAT JOB!!!” Really is nice knowing (my son) is connecting with friends during this time. Takes a load off of us and we appreciate your efforts!”
Here is what our DSAW Connects friends have been up to in class!
Wellness & Workout
A daily exercise program that helps participants get moving! DSAW Southeastern has explored a variety of workouts throughout the month like yoga and dancing. This class also discusses the benefits of movement, healthy lifestyle habits, and nutrition. More Information
Life Skills & Laughter
This class provides an interactive way to sharpen our everyday life skills, strengthen our brains, and uplift our spirits! The course covers a variety of topics, but has recently discussed environmentalism in preparation for Earth Day! Students shared ways they practice eco-friendly behavior and watched videos about endangered species and recycling! Class content and topics are always changing, but the goal is constantly to increase life skill knowledge! More Information
Creative Corner
Creative Corner is about fun, art, and resourcefulness! The instructor provides participants with information about how to turn household objects into craft projects! One of favorites from this month: paper plate emojis! Too cute! More Information
Stream Team
Stream Team is a fun, virtual hangout for self advocates ages 14+ (younger children should check out TWEEN Stream Team). This is a social hour packed with music, videos, and laughter. Our Southeastern Stream Team loves Disney karaoke parties, virtual talent shows, and watching videos for “Song of the Week.” More Information
Social Skills
This class combines activities, games, and humor to get the group talking! A game our Southeastern group loves is “Would You Rather?” This game allows participants to share their opinions and thoughts in a structured and fun format. More Information
Young Leaders Academy
It’s our Young Leaders Academy course… just online! This class is a continuation of the in-person classes we offer at DSAW’s office (west side) and on the east side, but we welcome new registrants as well! More Information
Parents’ Night In
DSAW is also thinking about how we can support parents and caretakers during this time! We started a virtual meet up called “Parents’ Night In” to provide socialization and community for this important group. Parents’ Night In takes place online every Friday from 8-9 PM and has been very successful so far!
Fox Cities, Green Bay, and Central WI
DSAW expanded the new online programming to the Fox Cities area and beyond! DSAW Connects: DSAW- Fox Cities Virtual Class Series has all of the DSAW Connects content run by the familiar faces from Fox Cities that our families know and love! Just like our Southeastern program, some courses are offered completely free!
See what DSAW- Fox Cities has been up to during their classes!
Wellness & Workout
This is the DSAW-Fox Cities “no couch potato club"!” We try different forms of exercising and movement every morning. One of our favorite sessions this month was a Star Wars themed yoga practice! Brittany the instructor found an awesome yoga video that told the story of Star Wars through a series of yoga poses. It was the perfect workout for this group! More Information
Creative Corner
Creative Corner is a relaxing and fun class that tells participants how to turn household objects (cereal boxes, toilet paper tubes, etc.) into crafts! This month, DSAW- Fox Cities made 3-D flowers out of cardboard, dream catchers, and more! More Information
Stream Team
Stream Team focuses on letting the participants socialize with their peers through a variety of activities! DSAW- Fox Cities loves playing “Would You Rather” and other question-based games. More Information
Life Skills & Laughter
This content-based course has been focused on personal hygiene and self-care during the month of April. The instructors use videos to demonstrate important behaviors like hand-washing and the class has discussions about the daily topics. For this course, the lesson topics change every day! More Information
March 21 celebrates World Down Syndrome Day
Families and teachers getting creative to provide students with special needs enriching remote education
Global Down Syndrome Foundation Announces Eight Grant Winners At The National DS Affiliates In Action Conference
Looking Back on February 2020
Statewide
Conference: Helping Children with Learning Disabilities Find Social Success
The Audrey Hohenwalter Endowment Fund sponsored a conference presented by Richard Lavoie on February 22nd. This seminar identified specific causes of social skill deficits, as well as field-tested strategies that will be presented that can be used by parents, teachers, coaches, and caregivers to assist students in gaining peer acceptance and developing age-appropriate social skills.
Southeastern WI
Valentine’s Dance
The Valentine’s Dance is always one of the most fun events of the year! The DSAW headquarters transformed into a lively Valentine’s Day dance floor. The atmosphere was filled with red and pink colors, and plenty of smiles!
Club DSAW
For this month’s Club DSAW, we traveled to Urban Ecology Center for a Winter Wonderland Nature Hike. Many enjoyed a hike around the woods, followed by a hot chocolate bar and other activities.
Meals, Money, and More Our Meals, Money, and More class revolves around healthy living and wellness as well as money management and other independent living skills for transition age individuals with Down syndrome. Click here to register for the Eastside and Westside location for this semester.
How to Balance My Social Life Class
We began our winter class helping students understand social boundaries, cultivate friendships, personal safety, social media, and dating. Click here to register for our Eastside and Westside locations for the winter 2020 semester!
Personal Safety Awareness Eastside
We started our Winter Semester of our Safety and Self Defense class. This class teaches real world safety techniques and strategies. Students learn self defense skills, how to get help, and how to assess a dangerous situation. Learn more about here.
Digitability Class We began our winter semester of our award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces! Learn more about the West Allis location here for the winter semester. Interested in the Eastside location? Click here!
Life Skills Bootcamp
We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupational therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Come check out our newly renovated Littles Room at playgroup!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Cooking with the Kiddos
Cooking with the Kiddos is held every first and third Wednesday at DSAW’s state headquarters! Bring your children ages 8+ to spend the evening cooking a healthy meal together! You can also drop off your child for a night of respite. Let your dinner be on DSAW!
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Sign up for Tween Club!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month.
Fox Cities
Teen FrienDS Club At Teen FrienDS Club, we listen to music, watch movies, eat snacks, and play games! Teen FrienDS Club is hosted the 2nd Friday night of each month.
Valentine’s Dance
DSAW-Fox Cities had a great time at our annual Valentine’s Dance!
Green Bay
Normie Screening Event
DSAW-Green Bay and Best Buddies Green Bay co-sponsored a special viewing of the documentary Normie: “When Annemarie looks in the mirror, she sees Down syndrome. She hates it. To her, the diagnosis is a giant barricade keeping her from the independence and intimacy she desperately desires. She embarks on a journey of self-discovery as she tries to understand what it means to be normal.” Thanks to all those who attended!
Buddy Up Tennis
DSAW-Green Bay started a new session of our new Buddy Up Tennis, Inc. Program, a high energy, adaptive fitness program for children and adults with Down syndrome, this month.
Young Leaders Academy
Our Young Leaders Class is a respite program coupled with a unique curriculum that will introduce students to important topics such as work ethic, attitude, communication skills, time management, problem-solving, and more.
Playgroup
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play at Get Air Green Bay this month. This Trampoline Park offered dedicated time just for jumpers with special needs. Music is played at a lower volume and park’s atmosphere is calmer! So much fun! DSAW-Green Bay hosted another playdate this month at Kidz Town, free of charge. Everyone had so much fun playing with the toys and meeting new friends.
Mom’s Night Out
This month, moms, aunts, grandmas, and female caregivers gathered for a night of camaraderie and great food at Mr. Brews Taphouse. Yum! Thanks for the great conversations!
Central Wisconsin
“Working” Coffee Club
Parents gathering for coffee and to talk sponsorship and donation strategies for the upcoming Awareness Walk!
Book Club
We continued a new book club for parents, adult siblings, and caregivers of individuals with Down syndrome. We discussed the first four chapters of Scoot Over and Make Some Room by Heather Avis. Future meetings will take place at Mosinee Brewing Company on the second Tuesday of each month (from 5:30-7pm) and will include appetizers! Click here to learn more!
Wellness Club
Our Wellness Club has had an incredible winter run! We had our last session of the season this month.
MADSS
Family Bowling & Pizza Party
Strike! MADSS families enjoyed two hours of bowling, delicious pizza, and thirst-quenching soda, all for FREE.
Dynamic Duals
MADSS had their first Dynamic Duals of the decade! “Dynamic Duals, a program created and piloted as a collaboration with GiGi’s Playhouse in Madison and MADSS, is a monthly program designed specifically for families with a dual diagnosis of DS-ASD and/or sensory behavioral challenges.” The Duals engage in a variety of activities that work to support motor skills, improve communication, and explore the sensory world.
La Crosse
Sledding Party
Snow is not always a bad thing! DSAW-LAX Families gathered together for a day of sledding and tubing at Whitetail Ridge Ski Area.
Kid’s Cooking Class
DSAW-LAX hosted a cooking class at the YMCA for kids this month! Everyone enjoyed learning how to cook Hamburger Cups.
Looking Back on January 2020
Southeastern WI
Sensory Sunday at Discovery World
DSAW met up at Discovery World for a Sensory Sunday! The volume is turned down and the lights are adjusted to make a more sensory-friendly experience!
Meals, Money, and More Our Meals, Money, and More class revolves around healthy living and wellness as well as money management and other independent living skills for transition age individuals with Down syndrome. Click here to register for the Eastside and Westside location for this semester.
How to Balance My Social Life Class
We began our winter class helping students understand social boundaries, cultivate friendships, personal safety, social media, and dating. Click here to register for our Eastside and Westside locations for the winter 2020 semester!
Personal Safety Awareness Eastside
We started our Winter Semester of our Safety and Self Defense class. This class teaches real world safety techniques and strategies. Students learn self defense skills, how to get help, and how to assess a dangerous situation. Learn more about here.
Digitability Class We began our winter semester of our award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces! Learn more about the West Allis location here for the winter semester. Interested in the Eastside location? Click here!
Life Skills Bootcamp
We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupational therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Come check out our newly renovated Littles Room at playgroup!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Cooking with the Kiddos
Cooking with the Kiddos is held every first and third Wednesday at DSAW’s state headquarters! Bring your children ages 8+ to spend the evening cooking a healthy meal together! You can also drop off your child for a night of respite. Let your dinner be on DSAW!
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Sign up for Tween Club!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month.
Fox Cities
Teen FrienDS Club At Teen FrienDS Club, we listen to music, watch movies, eat snacks, and play games! Teen FrienDS Club is hosted the 2nd Friday night of each month.
Green Bay
Buddy Up Tennis
DSAW-Green Bay started a new session of our new Buddy Up Tennis, Inc. Program, a high energy, adaptive fitness program for children and adults with Down syndrome, this month.
Young Leaders Academy
Our Young Leaders Class is a respite program coupled with a unique curriculum that will introduce students to important topics such as work ethic, attitude, communication skills, time management, problem-solving, and more.
Playgroup
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play at Get Air Green Bay this month. This Trampoline Park offered dedicated time just for jumpers with special needs. Music is played at a lower volume and park’s atmosphere is calmer! So much fun! DSAW-Green Bay hosted another playdate this month at Kidz Town, free of charge. Everyone had so much fun playing with the toys and meeting new friends.
Mom’s Night Out
This month, moms, aunts, grandmas, and female caregivers gathered for a night of camaraderie and sushi at Sushi Lover. Yum! Thanks for the great conversations!
Central Wisconsin
Book Club
This month, Central Wisconsin launched a new book club for parents, adult siblings, and caregivers of individuals with Down syndrome. We discussed the first four chapters of Scoot Over and Make Some Room by Heather Avis. Future meetings will take place at Mosinee Brewing Company on the second Tuesday of each month (from 5:30-7pm) and will include appetizers! Click here to learn more!
Wellness Club
Wellness Club is for teens and young adults to learn more about nutrition and fitness! Nutrition plans and fitness activities will be involved. This is a great learning opportunity for both teens and young adults.
MADSS
Parent’s Holiday Party in Madison
MADSS hosted a Parent’s Holiday Party at Working Draft Beer Company this month! Parents, grandparents, adult siblings, and caregivers of individuals with Down syndrome gathered to spread more holiday cheer! There were a lot of laughs with the white elephant gift exchange. Thanks to all who joined.
Dynamic Duals
MADSS had their first Dynamic Duals of the decade! “Dynamic Duals, a program created and piloted as a collaboration with GiGi’s Playhouse in Madison and MADSS, is a monthly program designed specifically for families with a dual diagnosis of DS-ASD and/or sensory behavioral challenges.” The Duals engage in a variety of activities that work to support motor skills, improve communication, and explore the sensory world.
La Crosse
Family Night Out - Winter Pool Party
Winter is just a mindset! DSAW-La Crosse channeled their inner summer selves and enjoyed a Family Pool Party at Eliza’s House. DSAW reserved the heated pool and the hot tub for the day so families could come splish and splash. Thanks to all who came out!
Advocacy Alert: WI ABLE Program
ABLE (Achieving a Better Life Experience) accounts are a great new way for people with disabilities (or families on their behalf) to save money without harming their eligibility for important benefits like Medicaid or Social Security.
Unfortunately, many Wisconsin residents don't even know about ABLE or how to set up an account. That's because Wisconsin is one of just 9 states that has chosen not to operate or market an ABLE program. We can change this!
Bi-partisan legislators have just introduced an ABLE bill that would require the state Department of Financial Institutions to start an ABLE program. This will increase awareness about ABLE as a savings tool so people with disabilities and their families feel more secure about earning and saving more money in an ABLE account to put toward important extra expenses like transportation, housing or other support needs. You can learn more about ABLE here: https://www.ablenrc.org/
If you think Wisconsin should join the other 41 states with ABLE programs and make sure state residents with disabilities and their families know about ABLE here's what you can do:
Contact your State Assembly Representative and State Senator TODAY and ask them to support LRB-3165 and LRB-5380 - the ABLE bill!
Go to Who are My Legislators to find your rep's contact information: https://legis.wisconsin.gov/
Contact your representatives by January 24th (THIS Friday!!)
You can find links to the current ABLE bill draft and legislator memo here.
Thank you for supporting increased independence for people with disabilities!
Meet a DSAW Leader: Abigail
I was hired by DSAW in November of 2019 as the Marketing & Events Coordinator. It is exactly the type of position I wanted to have after I graduated from Saint Norbert College in May. While studying English and communication & media in school, I gained an understanding of how the various forms of language can impact change. I wanted to use my education in this area to positively impact my community.
I grew up going to DSAW events with my parents, sister, and older brother who has Down syndrome. Shortly after I got my new job, my dad reminded me that he and my mom were some of the first parents in the area to start DSAW back in the 90s. I feel very lucky to be able to work for an organization that has been such a big part of my family's life.
At work, I enjoy sipping coffee and chatting with coworkers, creating social media posts for all the chapter websites, meeting board members on our monthly calls, and planning all of the super fun events.
Outside of work, I like to travel when I can, read Stephen King books, paint, maintain my cinnamon roll blog, and spend time with my boyfriend Hawkin (who also loves volunteering at DSAW events).
Any questions about events, programs, or just to connect, please email me at abigail@dsaw.org or give me a call at 414.327.3729 ext 105.
Looking Back on December 2019
Southeastern WI
Holiday Party
In December, we hosted our Annual Holiday Party at the State Office. The day was full of games, crafts, food, dancing, contests, presents, and even a visit from Santa. Thank you to all the families who came out to celebrate - we had so much fun!!
Club DSAW - Packer Party
DSAW Self-Advocates celebrated the holidays at a Packer Holiday Party. We cheered the Packers on for a win against the Chicago Bears, while enjoying delicious snacks and holiday activities. It was a perfect way to kick off the holidays.
Meals, Money, and More Our Meals, Money, and More class revolves around healthy living and wellness as well as money management and other independent living skills for transition age individuals with Down syndrome. We will be offering this class again after the new year. Click here to register for the Eastside and Westside location.
How to Balance My Social Life Class
We also concluded our fall class helping students understand social boundaries, cultivate friendships, personal safety, social media, and dating. Click here to register for our Eastside and Westside Location for the winter 2020 semester!
Personal Safety Awareness Eastside
We concluded our fall semester of our Safety and Self Defense class. This class teaches real world safety techniques and strategies. Students learn self defense skills, how to get help, and how to assess a dangerous situation. Learn more about the Eastside location for the Winter Semester here.
Digitability Class We finished our fall semester of our award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces! Learn more about the West Allis location here for the winter semester. Interested in the Eastside location? Click here!
Life Skills Bootcamp
We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupational therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Come check out our newly renovated Littles Room at playgroup!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! In December, we welcomed a magician who showed us some awesome magic tricks! Sign up for Tween Club!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month.
DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.
Fox Cities
Teen FrienDS Club At Teen FrienDS Club, we listen to music, watch movies, eat snacks, and play games! Teen FrienDS Club is hosted the 2nd Friday night of each month.
Green Bay
Holiday Movie Event
We got together right before the holidays for a movie event at De Pere Cinema! We all watched the new release of The Lion King and had a blast!
Buddy Up Tennis
DSAW-Green Bay concluded the fall session of our new Buddy Up Tennis, Inc. Program, a high energy, adaptive fitness program for children and adults with Down syndrome, this month.
Young Leaders Academy
Our Young Leaders Class is a respite program coupled with a unique curriculum that will introduce students to important topics such as work ethic, attitude, communication skills, time management, problem-solving, and more.
Playgroup
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play at Get Air Green Bay this month. This Trampoline Park offered dedicated time just for jumpers with special needs. Music is played at a lower volume and park’s atmosphere is calmer! So much fun!
Central Wisconsin
Central WI Holiday Event
Central WI hosted an Annual Holiday Party, filled with games, crafts, food from Texas Roadhouse, and holiday fun for all ages. Santa Claus visited from the North Pole to give a small gift to each child with Down syndrome and siblings!
Wellness Club Wellness Club is for teens and young adults to learn more about nutrition and fitness! Nutrition plans and fitness activities will be involved. This is a great learning opportunity for both teens and young adults.
Chippewa Valley
Chippewa Valley Holiday Party
Like last year, the Chippewa Valley Holiday party was held at Westgate Sportsman Club in Eau Claire! Families enjoyed delicious chili and soups, holiday treats and snacks. Kiddos could play in holiday games and make fun crafts as well.
MADSS
Movie Event in Johnson Creek
Do you want to build a snowman? Families joined Anna, Elsa, Olaf, Kristoff, and Sven for a special Frozen II Movie Event. This was a free event for MADSS families!
Cookie Decorating Party
We want to thank the Schuster Family for graciously opening up their home for a fun cookie decorating party. It was a perfect way to spread holiday cheer.
La Crosse
La Crosse Holiday Party
La Crosse joined the festivities with a holiday party. From holiday cookie decorating to a hot chocolate bar to a visit from Santa and Mrs. Claus, it was perfect way to kick off the holiday season.
Self Advocate Social
DSAW-La Crosse hosted a self-advocate social to see the La Crosse Rotary Lights. There, we enjoyed carriage rides, hot cocoa, and a breathtaking view of holiday lights. Thanks to all those who joined.
Sheboygan
Holiday Party
DSAW-Sheboygan hosted their holiday party at the Odyssey Fun Center. There, families were able to bowl, decorate cookies, listen to music, and enjoy delicious pizza. Thanks to all those who came out.
Critical Job Skills Training
What would your life be like if you were never taught how to send an email? If you didn't know how to shop online?
Learning how to video chat in Digitability
Young adults with Down syndrome and other developmental disabilities often experience the "digital divide" as they move throughout the school system and after they graduate from high school. Not being exposed to or not having basic computer literacy skills places students with intellectual and developmental disabilities at an extreme disadvantage as they enter the job market. Consequently, they remain, as a group, unemployed, underemployed, and disenfranchised from the employment sector.
To address this critical need, DSAW is piloting a new Digitability class in Southeastern Wisconsin. Digitability helps individuals with disabilities develop an understanding of computers. Additionally, Digitability provides students with real life work simulations where they can apply what they are learning. This popular program has made a huge difference already! Click here to read a feature about our class's success on the Digitability website. We offer the program at several locations across the Milwaukee area, and the curriculum will be implemented in DSAW communities around the state in 2020! DSAW is the first community-based setting for this course (it is usually offered in schools), and we are a pilot for other disability groups across the country!
When you support DSAW, you give the gift of computer literacy training to people with disabilities.
DSAW staff member Sarah is the instructor for the course and a huge advocate for the program. "I am impressed with how successful this program has been for my students. I see their understanding and knowledge growing and, most importantly, their confidence in working with these twenty-first century skills."
Participating in Digitability has already helped students in their jobs! Nick started working at Fresh Thyme Market this year. He enrolled in the Digitability program at DSAW around the same time and has improved his use of his phone as a support, as well as other digital skills for the workplace. Nick loves his job, and with his new tech skills he wants to learn to run a digital cash register! He now works independently and with continued use of Digitability, he hopes to find a job using computers.
When you make a year-end gift to DSAW, you help people with Down syndrome thrive. Will you help people like Nick to gain the tech skills necessary for today's workplaces?
Sporting Events Tips & Tricks (Sponsored by Brewers Community Foundation)
Written by Brett Braza, DSAW’s Marketing & Communications Intern
Watching sporting events can be overwhelming for individuals with Down syndrome and other disabilities or sensory needs. From the loud noises to colorful lights, it can be an unusual environment for any child. However, there are many ways to overcome this environment. Here are five ways to help prepare your child for the best experience possible when attending a sporting event:
Prepare your child by watching a few games on television and looking over pictures of the sport the days preceding the game. This way, your child can have an idea of what to expect and can look for familiar sights.
Arrive at the stadium early to avoid large crowds. Your child will have time to gain familiarity with their surroundings and be able to get settled in their seat before guests flow in.
Have your child sit in between two family members or familiar people they are comfortable with; two bookends around them will help them ease into the environment.
Pack familiar foods and items for your child. Things such as toys, stuffed animals, or a tablet can comfort and distract your child. Packing familiar snacks can not only keep a hungry child happy but also help you to avoid long lines.
Find a family restroom to utilize as a quiet room or utilize noise-cancelling headphones to block out sound if it ever becomes too loud for your little one. Additionally, taking a walk around the stadium can be a nice distraction. Miller Park, home of the Milwaukee Brewers, has a number of fun activities for kids, such as playgrounds and pitching booths.
Thank you to the Brewers Community Foundation, Inc. for being a proud partner of DSAW!
Try out these tips and tricks to make sure your next trip to a sporting event with your child is a grand slam! We would like to thank the Milwaukee Brewers Community Foundation for their amazing partnership! They aim to provide a world class experience for individuals of all abilities.
Www.facebook.com/kidmunicate. “Autism Social Stories: Preparing to Go to a MLB Baseball Game.” Kidmunicate, 23 Dec. 2018, https://kidmunicate.com/autism-social-stories-baseball-stadium/.
Meet Hannah
Hannah at work
DSAW touches the lives of more than 5,500 people with Down syndrome and their families across Wisconsin through the provision of services, education, resources, and support. One of those people is Hannah.
Hannah and her family found a home at DSAW over 10 years ago. Hannah's mom, Liz, loves that DSAW provides a "safe, fun,and accepting space where staff encourages Hannah to learn, try new things, and express herself."
Hannah participates in many of DSAW's programs and services. But none of them would have been possible for Hannah without DSAW supporters like you!
"I have been in the summer Life Skills and Laughter class, and I took the Health and Wellness class. I am in Young Leaders Academy (employment skills training) and the Meals, Money, and More program. The programs I take help me learn a lot!"
DSAW-Family Services provided job coaching to help Hannah secure a job that she LOVES in the floral department at Pick N Save: "I like my job coaches because they answer my questions if I need help, they pay really good attention, and they help me with solutions that help me do better at my job."
Through DSAW's Peer Sensitivity program, Hannah visits schools to teach kids about Down syndrome and how to treat friends with disabilities.
When you make a gift to DSAW, you fund a wide range of life-changing programs and services that support thousands of people like Hannah around the state.
Now that Hannah is out of school, Liz is thankful for DSAW's programming that allows Hannah opportunities for continued growth and development of new interests. "The people in this organization are committed to Hannah succeeding! It has made a big difference in our vision of the future knowing that Hannah can try new things and there will be supports available who will help her succeed!"
In the future, Hannah dreams of living in her own apartment and of having a boyfriend. Liz hopes that Hannah will have an active life full of opportunities for learning and will be independent but surrounded by friends, family, and creative support people when she needs them. As Hannah's family looks toward the future, so does DSAW.
Look what we've done together in the last 30 years. We've built a strong, vibrant community and developed life-changing programs and services. With your gift to DSAW, you will help people in the next 30 years to find a home with DSAW and to realize their dreams. Their dreams of sustainable housing options. Of meaningful employment. Of care and resources for loved ones as they age. Will you make a year-end gift to support Hannah's dreams and the dreams of our friends with Down syndrome across Wisconsin? We couldn't do it without you!
Erin's Family & Parent's First Call
When you donate to the Down Syndrome Association of Wisconsin, you fund life-changing programs and services that help families find a home with DSAW. You've learned about DSAW-Fox Cities and their replicable programs, our partnership with the Arc Wisconsin, and our Medical Outreach program. Did you know that DSAW offers new parents the opportunity to connect with a support parent soon after they receive their child's diagnosis?
Erin and her daughters
This year, our partners across the state worked together to roll out a statewide integration of the Parent's First Call program. When new and expectant parents across the state look for resources and support following a diagnosis, they will be directed to one, integrated program! With Parent's First Call, we offer up-to-date resources, Expectant Parent Packs and New Parent Welcome Baskets, and the opportunity to connect with other parents who have had similar experiences. Click here to learn more about Parent's First Call!
The Parent's First Call program has made a huge difference for Erin and her family. "We didn't know Genevieve would have Down syndrome, and having a parent to talk to who may have gone through the same thing was very helpful! It was especially helpful because Genevieve ended up needing heart surgery at 4 months old." Imagine the difference that this program makes in the lives of families who receive a diagnosis and don't know where to turn. With your generosity, you can give a new parent an invaluable connection when they need it most.
Erin is grateful for her support parent and for the Parent's First Call program: "It's just nice to know I have someone I can reach out to whenever I need or whenever something new may come up."
You have the power to help us make these relationships! You can make it possible for families to receive support and resources during a potentially difficult time. When you support DSAW, you support families like Erin's.
Please consider DSAW in your year-end giving. By donating today, you can give others the resources and support to help them on the first steps of their journey with Down syndrome.
Medical Outreach & Dr. Skotko
Happy Giving Tuesday! After a long weekend of spending, today is the day that we give back to organizations in our communities. To show you the power of your gift, we'd like to tell you about our Medical Outreach program.
Dr. Brian Skotko in Milwaukee, WI in July, 2019
Many DSAW parents recall feeling scared and uncertain after receiving their child's Down syndrome diagnosis. Medical professionals too often start with "I'm sorry" and share stacks of outdated information about Down syndrome. DSAW knows the importance of a compassionate, unbiased diagnosis of Down syndrome and how much that can change a family's experience. That's why we started our Medical Outreach program, which sets out to provide continuous education to healthcare professionals on how to deliver a diagnosis of Down syndrome. In addition, we give medical providers information about DSAW and encourage them to connect new families with our organization for resources and support.
Dr. Skotko trains medical students
This year, we brought Dr. Brian Skotko, M.D., M.P.P, to Milwaukee, Madison, and La Crosse to train resident medical professionals on delivering a Down syndrome diagnosis. Dr. Skotko is the Director of the Down Syndrome Program at Massachusetts General Hospital, an Associate Professor at Harvard Medical School, and has a sister with Down syndrome. He recognizes the importance of DSAW's program and that "new and expectant parents say over and over again that they would like access to quality, up-to-date information and the option to connect with other parents. DSAW's Medical Outreach program provides those critical pieces at a very sensitive time for families."
From his time in Wisconsin this summer, Dr. Skotko learned that "our work together is not over. Until every new and expectant parent knows about DSAW, we still have work to do. Obstetricians, nurses, and midwifes are constantly changing, so the outreach work must continue!"
YOU can help us continue this vital work! You can give a new parent a message of "Congratulations" instead of "I'm sorry." When you support DSAW, you support families in the moments following a diagnosis.
Today is Giving Tuesday. By donating today, you give a new family a better, more positive experience from the first moment they begin their journey with Down syndrome.
Important Aging Initiatives
Would you take a break for a few minutes to read about DSAW's important aging initiatives and our partnership with the Arc Wisconsin? We want to support individuals with Down syndrome who are aging, and we want to educate ALL families about aging. These programs are incredibly important, and we need your help to sustain them!
Focus group hosted by DSAW, the Arc, and Wisconsin Upside Down
In 2019, DSAW partnered with the Arc Wisconsin and Wisconsin Upside Down to create new resources and expand our aging program initiatives. Lisa Pugh, Executive Director of the Arc Wisconsin, highlights that "this past year we didn't just work together to create resources in a vacuum, we met directly with families and self-advocates to hear from them about what would help. Out of those meetings and surveys came key information that is helping our organizations to answer questions and increase awareness. We are working to alleviate people's fears and help them plan for the future."
Together, DSAW, the Arc Wisconsin, and Wisconsin Upside Down have created invaluable resources based on the wants and needs of our families. We developed fact sheets for family members, disability professionals, and self advocates. We collaborated to roll out a revamped, online resources library. In October we hosted a popular webinar with Lisa and Leone Murphy, parent/APN/member of the National Task Group on IDD and dementia, about Preparing for Aging & Dementia: Supporting Your Loved One with Down Syndrome.
Lisa recognizes the power of partnering to serve our families the best that we can: "As we learn more about the risk of Alzheimer's and dementia for people with Down syndrome, we are recognizing how families are truly desperate for good information and support. It has been great for The Arc Wisconsin to partner with the Down Syndrome Association of Wisconsin to meet this need."
DSAW is committed to the continued growth of our aging and Alzheimer's programming. The launch of this important program was supported by the generosity of Bader Philanthropies and is sustained by YOU!
When you support DSAW, you support families who face new challenges as their loved ones age. You support self advocates who are living longer lives than ever before!! Will you consider making a gift to DSAW? Let's celebrate Giving Tuesday together.
