Medical Outreach & Dr. Skotko

Happy Giving Tuesday! After a long weekend of spending, today is the day that we give back to organizations in our communities. To show you the power of your gift, we'd like to tell you about our Medical Outreach program.

Dr. Brian Skotko in Milwaukee, WI in July, 2019

Many DSAW parents recall feeling scared and uncertain after receiving their child's Down syndrome diagnosis. Medical professionals too often start with "I'm sorry" and share stacks of outdated information about Down syndrome. DSAW knows the importance of a compassionate, unbiased diagnosis of Down syndrome and how much that can change a family's experience. That's why we started our Medical Outreach program, which sets out to provide continuous education to healthcare professionals on how to deliver a diagnosis of Down syndrome. In addition, we give medical providers information about DSAW and encourage them to connect new families with our organization for resources and support.

Dr. Skotko trains medical students

This year, we brought Dr. Brian Skotko, M.D., M.P.P, to Milwaukee, Madison, and La Crosse to train resident medical professionals on delivering a Down syndrome diagnosis. Dr. Skotko is the Director of the Down Syndrome Program at Massachusetts General Hospital, an Associate Professor at Harvard Medical School, and has a sister with Down syndrome. He recognizes the importance of DSAW's program and that "new and expectant parents say over and over again that they would like access to quality, up-to-date information and the option to connect with other parents. DSAW's Medical Outreach program provides those critical pieces at a very sensitive time for families."

From his time in Wisconsin this summer, Dr. Skotko learned that "our work together is not over. Until every new and expectant parent knows about DSAW, we still have work to do. Obstetricians, nurses, and midwifes are constantly changing, so the outreach work must continue!"

YOU can help us continue this vital work! You can give a new parent a message of "Congratulations" instead of "I'm sorry." When you support DSAW, you support families in the moments following a diagnosis.

Today is Giving Tuesday. By donating today, you give a new family a better, more positive experience from the first moment they begin their journey with Down syndrome.

Important Aging Initiatives

Would you take a break for a few minutes to read about DSAW's important aging initiatives and our partnership with the Arc Wisconsin? We want to support individuals with Down syndrome who are aging, and we want to educate ALL families about aging. These programs are incredibly important, and we need your help to sustain them!

Focus group hosted by DSAW, the Arc, and Wisconsin Upside Down

In 2019, DSAW partnered with the Arc Wisconsin and Wisconsin Upside Down to create new resources and expand our aging program initiatives. Lisa Pugh, Executive Director of the Arc Wisconsin, highlights that "this past year we didn't just work together to create resources in a vacuum, we met directly with families and self-advocates to hear from them about what would help. Out of those meetings and surveys came key information that is helping our organizations to answer questions and increase awareness. We are working to alleviate people's fears and help them plan for the future."

Together, DSAW, the Arc Wisconsin, and Wisconsin Upside Down have created invaluable resources based on the wants and needs of our families. We developed fact sheets for family members, disability professionals, and self advocates. We collaborated to roll out a revamped, online resources library. In October we hosted a popular webinar with Lisa and Leone Murphy, parent/APN/member of the National Task Group on IDD and dementia, about Preparing for Aging & Dementia: Supporting Your Loved One with Down Syndrome.

Lisa recognizes the power of partnering to serve our families the best that we can: "As we learn more about the risk of Alzheimer's and dementia for people with Down syndrome, we are recognizing how families are truly desperate for good information and support. It has been great for The Arc Wisconsin to partner with the Down Syndrome Association of Wisconsin to meet this need."

DSAW is committed to the continued growth of our aging and Alzheimer's programming. The launch of this important program was supported by the generosity of Bader Philanthropies and is sustained by YOU!

When you support DSAW, you support families who face new challenges as their loved ones age. You support self advocates who are living longer lives than ever before!! Will you consider making a gift to DSAW? Let's celebrate Giving Tuesday together.

Looking Back on November 2019

Southeastern WI

Sexuality & Safety Conference
DSAW hosted an educational Sexuality & Safety Conference in November. In Session 1 of the conference, Terri Couwenhoven discussed sexual learning patterns that increase vulnerability, the unique “how-to’s” of teaching sex education for this population, as well as identified topics for empowering healthy sexuality in individuals with I/DD at home, school, and in the community. Session 2 was presented by Pam Malin. She identified safety concerns, signs and symptoms of abuse, as well as resources for when abuse occurs. Thank you to those who attended this important conference!

Parent’s First Call Support Parent Training
In November, The Down Syndrome Association of Wisconsin (DSAW) in partnership with Parent to Parent of Wisconsin (P2P) hosted a training for support parents. Trainings prepare you to give support to another parent of a child with Down syndrome! We had a wonderful day meeting other parents and talking about our loved ones and how we can support new families!

Club DSAW - Turkey Trot
Club DSAW celebrated Thanksgiving with a Turkey Trot at the Urban Ecology Center. Self advocates walked and trotted off their turkey dinner before even eating it at Thanksgiving. Afterwards, we enjoyed a warm, cozy campfire!

IDDLCTF Community Housing Conversation
DSAW is involved in exciting plans for sustainable housing for people with disabilities!! Our partner Bader Philanthropies hosted a conversation about housing and living communities for people with intellectual and developmental disabilities. We got to hear from speakers from Home of Our Own, Grace Landing, Balance Inc., and Woodside Prairie.

Meals, Money, and More Our Meals, Money, and More class revolves around healthy living and wellness as well as money management and other independent living skills for transition age youth individuals with Down syndrome.

How to Balance My Social Life Class
We also continued our new fall class helping students understand social boundaries, cultivate friendships, personal safety, social media, and dating. Click here to register!

Safety and Self Defense Eastside
We had another great month at our Safety and Self Defense class. This class teaches real world safety techniques and strategies. Students learn self defense skills, how to get help, and how to assess a dangerous situation. Learn more about the Eastside location here. Interested in Slinger location? Find out more here.

Littles Story Time
Children ages 0-6 years old are welcome to join us for Story Time at the state office! Story time is a great way for your child to have fun while making friends and learning.This month, our incredible self-advocate interns read to the littles! We will be taking a pause from Story Time for the rest of 2019 as our office undergoes an exciting remodel project!

Digitability Class Our fall semester of our award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces continued this month! Learn more about the West Allis location here. Interested in the Eastside location? Click here!

Life Skills Bootcamp
We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!

Motor Skills Playgroup                                   
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupational therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Playgroup will be taking a pause for the rest of 2019 as our office undergoes an exciting remodeling project!

Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime. 

Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Stay tuned for next month’s activity! Sign up for Tween Club!

Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month.

DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.

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Fox Cities

Teen FrienDS Club At Teen FrienDS Club, we listen to music, watch movies, eat snacks, and play games! Teen FrienDS Club is hosted the 2nd Friday night of each month.
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Green Bay

Cookie Decorating Event
We kicked off the holiday season with a Cookie Decorating Event. The sprinkles and frosting were flying as we colored up the cookies. Thanks to all those who attended!

Self Advocate Pottery Painting
Green Bay self advocates had their very own Pottery Painting Session this month. Self advocates were able to pick their piece and colors and then were able to paint it anyway they’d like!

Buddy Up Tennis
DSAW-Green Bay continued their new Buddy Up Tennis, Inc. Program this month. Buddy Up Tennis is a high energy adaptive and fitness program for children and adults with Down syndrome. Click here to learn more.

Playgroup 
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play at Get Air Green Bay this month. This Trampoline Park offered dedicated time just for jumpers with special needs. Music is played at a lower volume and park’s atmosphere is calmer! So much fun!

Dad’s Night Out
Dads, uncles, grandpas, and male caregivers had an exciting Dad’s Night Out playing tactical laser tag at the Battle House. They were divided into two teams: Red Team vs. the Blue Team and the competition began! During the game, there were 6-10 different mission based scenarios to complete. Thanks to all the male caregivers who attended!

Mom’s Night Out Moms, aunts, grandmas, and female caregivers joined us at Margarita’s for a night of good food and conversation! Green Bay Monthly Mom’s Nights Out will be the fourth Sunday of every month.

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Central Wisconsin

Central WI Movie Event
Let it Go! Let it Go! DSAW-Central WI enjoyed a private screening of Frozen 2 this month at the Cedar Creek Marcus Theatre. It was such a fun movie that had us singing hours afterward.

Central Children’s Museum Outing
DSAW-Central WI traveled to the Children’s Museum in Stevens Point for a FREE day of exploration around the museum. Then, we all enjoyed lunch together. Thank you to all the families that joined us.

Wellness Club
Wellness Club is for teens and young adults to learn more about nutrition and fitness! Nutrition plans and fitness activities will be involved. This is a great learning opportunity for both teens and young adults.

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MADSS

Rock County: Parent’s Night Out
Parents, grandparents, aunts, uncles, and caregivers of individuals with Down syndrome were invited for a night of fun and delicious food at Texas Roadhouse. MADSS provided the appetizers!

Mom’s Take 5
This month, marvelous MADSS moms gathered together to catch up at Benvenuto’s Italian Grill. We always love this time with fellow moms to enjoy appetizers and soft drinks. 

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La Crosse

La Crosse Inclusion Night DSAW-La Crosse co-hosted Inclusion Night at the Children's Museum of La Crosse, an event intended for people with disabilities to enjoy the museum at their own pace!

Parent’s Night Out
Parents, grandparents, caregivers, and adult siblings gathered for a night of fun conversation and great food. We were at Schmitty’s TimeOut Tavern…Yum! Join us next time!

DSAW-Fox Cities 10th Anniversary

Thanksgiving is just two days away. As you prepare your turkey (or tofurkey!), take some time to reflect on the things for which you are grateful.

Jennifer’s family

For ten years, Jennifer has been thankful that she found a home with DSAW-Fox Cities. When she moved to the Fox Cities area in 2009, she was afraid. Would there be anyone with Down syndrome there? Would her son Noah ever play sports? What would life be like? Ten years ago, DSAW's Fox Cities chapter was a small group of families who immediately reached out to Jennifer and welcomed her into their DSAW home.

Today, thanks to their incredible board members and volunteers, DSAW-Fox Cities is on fire. The chapter started several new programs in 2019, including a wellness class, summer camp, and the launch of DSAW-Family Services in their area. They threw a record-setting Awareness Walk and host a thriving "Teen FrienDS Club." Over 150 individuals have participated in their summer therapy programs over the last five years. They've distributed more than 15,000 shirts over the last seven years to local schools in order to promote inclusion and to raise awareness of the "Spread the Word to End the Word" campaign. These programs are replicable and can be implemented in your community!

Jennifer’s sons Noah and Tanner

As for Jennifer's fear that Noah would never play a sport? Noah has played with Miracle League of the Fox Valley for 9 years thanks to a Sports Participation Grant from DSAW-Fox Cities. And as for her worry that there wouldn't be anyone with Down syndrome in her area? Their community has grown so large that it's hard to keep track of everyone!

DSAW-Fox Cities and DSAW chapters across the state have helped so many families like Jennifer's to find a home with DSAW. As all of DSAW's locations continue to grow, imagine how many individual lives we will touch together in the future!

When you support DSAW, you support people like Jennifer. You support families who are scared and are looking for a community network. Will you consider making a gift to DSAW next Tuesday? You can even designate your gift toward a specific chapter!

Teaching Your Child to Read

Written by Brett Braza, DSAW’s Marketing & Communications Intern

Looking for tips on helping to teach your child with Down syndrome how to read? We know that while this is an exciting time, it may come with challenges too! Check out the resources below to help lead you on your journey. Have fun!!

Reading, practicing flashcards, or downloading educational computer programs for your child are excellent ways for individuals with Down syndrome to practice repetition and gain familiarity with the alphabet.

Having fun at Story Time!

 When searching for a book to read to your child, look for reading materials with colorful, engaging images and limited amounts of text. This way, children can finish feeling excited about the experience and are not overwhelmed by all the text on the page. A child seeing you or others read will also give encouragement to them to “mimic” you and try reading on their own. 

DSAW offers Littles Story Time at the state office, available for children ages 0-6 to come join! Littles Story Time is held on the first and third Thursday of each month from 10:30am-11:30am. There are frequent self advocate guests to read a book or two, and this is an excellent way to introduce your loved one to reading!

Flashcards, like books, are another effective way to engage your child. From phonemes to letters to individual words, there are flashcards for any level of reading level. Through repetition of sounds, children are able to work up to reading words and ultimately sentences. Through repetition, children begin associating pictures of objects with sounds and words! Here is a website at which you can print free flashcards from a number of different categories, including phonics and sight words. 

There are many excellent websites and computer programs that aid learning too! Special Reads is a high-interest reading program that is designed to engage readers right away. Through Special Reads, you can purchase different bundles at different levels and categories. Visit https://specialreads.com to learn more.

Voice Dream is a computer application that translates any digital text to speech. Being able to see words while synchronized with speeches improves understanding and conception. Voice Dream also has apps for writing and text recognition. The program is designed for anyone! Visit https://www.voicedream.com to learn more.

High Noon Books is a website specifically intended for students who are reading below the reading level for their grade. This program gives recommendations of books at each grade level for all interests and subjects. In each book, there is large emphasis on the most common words of the English language to increase exposure and chances of retaining their meaning. Learn more at their website.

We hope these resources help you and your child with reading! Have faith in your child’s abilities and celebrate their achievements, both big and small! Good luck!

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Cicerchia, Meredith, and University of Nottingham. “5 Tips for Teaching Children with Down Syndrome to Read.” Touch-Type Read and Spell (TTRS), 1 June 2019, www.readandspell.com/us/teaching-children-with-down-syndrome-to-read.

Looking Back on October 2019

Milwaukee

Halloween Movie Event

This month, we hosted our Annual Halloween Party at the Marcus Ridge Cinema. We held a sensory-friendly, private showing of the new Addams Family Movie. Afterwards, we hosted a Costume Contest and raffled off some cool items! Thanks to all the families that joined!

Club DSAW - Pumpkin Patch

Club DSAW celebrated Halloween at Schuett Farms this month. The day was spent exploring corn mazes, pumpkin picking, and launching pumpkins across the field with a slingshot. It was a great day.

Meals, Money, and More We had another successful month new fall class for transition age youth individuals with Down syndrome revolving around health living and wellness as well as money management and other independent living skills.

How to Balance My Social Life Class

We also continued our new fall class helping students understand social boundaries, cultivate friendships, personal safety, social media, and dating. Click here to register!

Littles Story Time
Children ages 0-6 years old are welcome to join us for Story Time at the state office! Story time is a great way for your child to have a fun while making friends and learning.This month, our incredible self-advocate interns read to the littles! We meet on the first and third Thursday of the month. Let us know you’re coming!

Digitability Class Our fall semester of our award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces began this month! Learn more about the West Allis location here. Interested in the Eastside location? Click here!

Life Skills Bootcamp
We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!

Coffee Club
Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.

Motor Skills Playgroup                                   
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Sign up to join us!

Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime. 

Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Stay tuned for next month’s activity! Sign up for Tween Club!

Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, September 13th!

DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.

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Fox Cities

Teen FrienDS Club At Teen FrienDS Club, we listen to music, watch movies, eat snacks, and play games! Teen FrienDS Club is hosted the 2nd Friday night of each month.
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Green Bay

Green Bay Family Pumpkin Farm Event
DSAW-Green Bay traveled to Delzer’s Pumpkin Farm this month for a day of fall fun. Families were able to feed animals, explore the haunted granary, and travel on a haunted hayride. Thanks to all those who came out.

Buddy Up Tennis
DSAW-Green Bay launched a new Buddy Up Tennis, Inc. Program this month and it has been such a blast. Buddy Up Tennis is a high energy adaptive and fitness program for children and adults with Down syndrome. Click here to learn more.

Playgroup 
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play outside at Titletown District Playground

Parent’s Night Out Moms, dads, uncles, aunts, grandmas, and caregivers joined us at the Thornberry Creek for night of good food and conversation!

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Central Wisconsin

Central Halloween Party
This month, DSAW-Central WI celebrated Halloween at Board Member Kris Halvorsen’s house in Marshfield. It was a great night of socializing, costumes, and delicious food.

Wellness Club

Wellness Club is for teens and young adults to learn more about nutrition and fitness! Nutrition plans and fitness activities will be involved. This is a great learning opportunity for both teens and young adults.

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MADSS

MADSS Fall Family Event at Schuster’s Farm MADSS joined in on the fall festivities at Schuster’s Farm. From 8 acres of corn maze, to 14+ acres of pumpkin, there was plenty of fun to be had at this event! Such a great time!

Dynamic Duals Dynamic Duals, sponsored by MADSS & GiGi’s Playhouse, is a monthly program designed specifically for families and individuals with a dual diagnosis of DS-ASD and/or sensory or behavioral challenges. Parents meet in one area to connect, have fun, share successes, resources, and strategies.

Mom’s Take 5
This month, marvelous MADSS moms gathered together to catch up. We always love this time with fellow moms to enjoy appetizers and soft drinks. 

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Sheboygan

Sheboygan & Surrounding Counties Awareness Walk We concluded our walk season with our 10th Annual DSAW-Sheboygan Awareness Walk! We loved seeing everyone walk the red carpet for our 21 Showcase. Thank you to everyone who supported our friends with Down syndrome this year.

Meet a DSAW Leader: Jennifer

Hello! My name is Jennifer Kosak and I have recently joined the DSAW-Green Bay Advisory Board. My husband, Matt and I are blessed with two amazing daughters, Isabelle (8) and Olivia (2).  We live in Suamico and have been married almost 14 years. I work as a Project Manager at Zymo Interactive. I love my job because I get to help create innovative and impactful solutions every day. When I'm not working you can find me spending time with my family and friends, traveling, and organizing anything and everything. I love to plan and organize! 

We received Olivia’s diagnosis after birth and it was not a great experience. The neonatologist who came in to deliver the news was anything but sensitive and basically told us we’d be lucky if Olivia got a job in fast food one day. Those first few days began as scary and overwhelming, along with the roller coaster of emotions and unanswered questions. It felt as though I was living someone else’s life and didn’t know how I was going to regain a sense of normalcy. We spent 28 days in the NICU with Olivia where we were connected with some remarkable doctors, nurses and members of the DSAW-Green Bay chapter who helped me to realize that Olivia was going to be whoever she wanted to be. One of the doctors told me Olivia was going to change the world and boy was he right. Fast forward 2 years and she has already changed mine. 

Over the past 2 years, I’ve finally started to see how much this diagnosis has blessed us as a family. Olivia has taught me to live in the moment, celebrate what I once overlooked and enjoy the journey.  Yes, this journey can sometimes still feel hard but it’s also indescribably beautiful. Parenting in general is overwhelming and scary but it’s also so exciting. It’s exciting to see how far Olivia has come in these last few years and even more exciting to think about where she’ll go in the future. She’s already gone from learning how to roll over, crawling, walking and now onto running. Yes, the progress can sometimes feel painfully slow but it’s in those moments that I’m reminded of the strength and determination that will allow her to change the world. 

I’m truly grateful that Olivia connected me to a whole community that I didn’t even know existed. The love, supportive embrace, and acceptance that I’ve felt from this community is like no other. It’s been such a joy to stand with other parents and champion our kids together. It’s for that reason that I wanted to get involved. I want to provide that same love, support and acceptance to others in our community. I want the opportunity to tell new parents who are receiving their new diagnosis, “Congratulations” and that your child will do amazing things and change the lives of so many. I want to be an advocate for inclusion and acceptance for Olivia and others with Down syndrome. I feel blessed to have this opportunity and look forward to the future! 

Looking Back on September 2019

Statewide

23rd Annual Down Syndrome Awareness Walk

In September, DSAW friends and families gathered for the 23rd Annual Down Syndrome Awareness Walk. We celebrated our friends with Down syndrome with the largest safari themed party ever. A little rain couldn’t keep us down! We want to extend a HUGE thank you to all of our donors, sponsors, and volunteers who made this event possible!

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Milwaukee

Southeastern Movie in the Park Meet-Up

Families enjoyed a FREE showing of the new Dumbo Movie at Konkel Park! Not only was the movie free, but the popcorn was as well! It was a night of fun and flying elephants for the whole family.

Meals, Money, and More This month, we launched a new fall class for transition age youth individuals with Down syndrome revolving around health living and wellness as well as money management and other independent living skills.

How to Balance My Social Life Class

We also launched a new fall class helping students understand social boundaries, cultivate friendships, personal safety, social media, and dating. Click here to register!

Littles Story Time
Children ages 0-6 years old are welcome to join us for Story Time at the state office! Story time is a great way for your child to have a fun while making friends and learning.This month, our incredible self-advocate interns read to the littles! We meet on the first and third Thursday of the month. Let us know you’re coming!

Digitability Class Our fall semester of our award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces began this month! Learn more about the West Allis location here. Interested in the Eastside location? Click here!

Life Skills Bootcamp
We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!

Coffee Club
Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.

Motor Skills Playgroup                                   
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Sign up to join us!

Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime. 

Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Stay tuned for next month’s activity! Sign up for Tween Club!

Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, September 13th!

DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.

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Fox Cities

Teen FrienDS Club At Teen FrienDS Club, we listen to music, watch movies, eat snacks, and play games! Teen FrienDS Club is hosted the 2nd Friday night of each month.
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La Crosse

La Crosse Down Syndrome Awareness Walk Families celebrated our friends with Down syndrome at the 17th Annual Greater La Crosse Area Down Syndrome Awareness Walk. The walk was a circus-themed party with a Family Festival, Awards Ceremony, and 21 Showcase! Thanks to all who helped make this event a success.

La Crosse Brat Barn Fundraiser

DSAW-La Crosse hosted a Brat Barn Fundraiser outside of Festival Foods. Families and friends gathered to enjoy one of Wisconsin’s finest foods.

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Chippewa Valley

DSAW-Chippewa Valley Down Syndrome Awareness Walk In September, DSAW-Chippewa Valley hosted their 13th Annual Awareness Walk! The massive support will help DSAW-Chippewa Valley begin implementing monthly playgroups and parent’s nights, education events, and MORE! Thank you all who made this event a success.

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Green Bay

Green Bay Young Leaders Academy
Our Young Leaders Class is a respite program coupled with a unique curriculum that will introduce students to important topics such as work ethic, attitude, communication skills, time management, problem-solving, acting as a team player, self confidence, ability to accept and learn from criticism, flexibility/adaptability and working well under pressure, personal hygiene, nutrition, and how your body talks. Young Leaders Academy takes place during the first and second Tuesdays of the month!

Playgroup 
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play outside at Titletown District Playground

Mom’s Night Out Moms, aunts, grandmas, and female caregivers joined us at the Old Chicago for night of good food and conversation. Monthly Mom’s Nights Out will be the 4th Sunday of every mont.

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Central Wisconsin

Central WI Down Syndrome Awareness Walk
DSAW-Central WI families gather at Marathon Park for the 2nd Annual Down Syndrome Awareness Walk. The event included a Family Festival, 21 Showcase, and cultivated in a 1-mile awareness walk around the park. Thank you to all who supported this event.

Movie Event This month, DSAW-Central enjoyed a private screening of the Peanut Butter Falcon at the Cedar Creek Cinema! We had so much fun, thanks to everyone who joined us.

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MADSS

Madison Area Down Syndrome Society Awareness Walk MADSS had a fun filled day at their Awareness Walk! Olin Park transformed into a massive party which included music, inflatables, obstacle courses, tattoos, photo booth, resources, raffles, and MORE! Thank you all joined us at this event.

Self-Advocate Movie Outing Lights, Cameras, Action! MADSS had a special Self-Advocate Movie Outing to see The Peanut Butter Falcon Movie this month.

Mom’s Take 5
This month, marvelous MADSS moms gathered together to catch up. We always love this time with fellow moms to enjoy appetizers and soft drinks. 

D.A.D.S. 12th Annual Camping Trip MADSS hosted their Annual DADS Camping Trip this month at the UWP Owners Retreat Center. MADSS families came down for a weekend of campfires, fun conversation, and even fireworks! MADSS supplied the food for the main meals!

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Looking Back on August 2019

Statewide

DSAW Launches an App This month, DSAW launched a brand new application! The app will connect families across the state, provide program and event information, offer access to our resource library, allow you to join groups, receive notifications, make donations from your phone, and more!

Click here to to download the app.

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Milwaukee

23rd Annual Tom Pipines Golf Outing On Wednesday, August 14th, DSAW friends and families gathered at Western Lakes golf course for a day of golf, great food, and fundraising! We want to extend a HUGE thank you to all of our donors, sponsors, and volunteers who made this event possible!!

Pool Party Families enjoyed a beautiful summer day by the pool for our awesome DSAW-only pool party! Thank you to everyone who came out to Hales Corners Pool to beat the summer heat with us!

Family Zoo Day DSAW families had a blast getting together at the Racine Zoo this month! We enjoyed many family fun activities including sack races and hula hooping! Of course we got to visit all the animals inside too!

Littles Story Time
Children ages 0-6 years old are welcome to join us for Story Time at the state office! Story time is a great way for your child to have a fun while making friends and learning.This month, our incredible self-advocate interns read to the littles! We meet on the first and third Thursday of the month. Let us know you’re coming!

Digitability Class This winter, we launched this award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces. Our summer semester just wrapped up and we learned so much! We will be offering this course in the Fall again. Learn more about the West Allis location here. Interested in the Eastside location? Click here!

Life Skills Bootcamp
We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!

Coffee Club
Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.

Motor Skills Playgroup                                   
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Sign up to join us!

Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime. 

Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Stay tuned for next month’s activity! Sign up for Tween Club!

Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, September 13th!

DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.

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Fox Cities

Movie Night This month we enjoyed a screening of Where Hope Grows, which stars DSAW-Fox Cities 2019 Walk Ambassador, David DeSanctis! We had so much fun together watching the movie and munching away on popcorn!

Pool Party ​We had so much fun celebrating summer with our fellow DSAW families! We spent the day in the sun splish-splashing around and enjoying snacks by the pool. Thanks to everyone who joined us at Doyle Park for our annual pool party!
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Camping Day What better way to spend a beautiful summer day then at the campgrounds?! Families had an absolute blast at Evergreen Campsites and Resort! We road the train, swam in the pool and lake, and played on the playground!

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La Crosse

Summer Picnic La Crosse families enjoyed a beautiful summer day with a family picnic! We enjoyed all of our favorite summer foods including burgers, brats, and BBQ chicken. Kiddos had a ton of fun fishing as well!

Holmen Kornfest Parade Self-advocates and supporters walked in the Holmen Kornfest Parade to spread awareness and represent the La Crosse Chapter. Thank you to everyone who joined us and helped us raise awareness!

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Chippewa Valley

Pool Party DSAW-Chippewa Valley families had so much fun at their pool party this month! We spent the day at Wakanda Waterpark splish-splashing around and enjoying the summer sun. Thank you to everyone who joined us for one of our favorite days!

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Green Bay

11th Annual Down Syndrome Awareness Walk
The Green Bay chapter kicked off Awareness Walk season with their Walk on August 17th at Green Isle Park with a luau themed walk! We had a beautiful day to welcome DSAW friends for inflatables, raffles, family fun, lunch, and more. It was so much fun to see the community come together and raise awareness of our friends. Thank you to all volunteers, donors, sponsors, families, friends, and to our incredible Walk committee! That’s a wrap!

Playgroup 
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play outside at Optimist Park this month for Miracle League closing day!

Haircut Fundraiser Thank you to Hype Hair, LLC for hosting a haircut fundraiser for our 2019 Walk! Kiddos and parents got their back to school haircuts while supporting a great cause!

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Central Wisconsin

Pool Day
DSAW-Central WI families traveled to Rothschild Pool for a fun day of splashing in the water. Thanks to everyone who joined us for some summer fun!

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MADSS

Family Pool Party MADSS families had a blast at Sun Prairie Family Aquatic Center for a day at the pool! We also enjoyed some light snacks and catching up with our amazing community while enjoying the beautiful summer weather.

Dynamic Duals MADSS & GiGi’s Playhouse sponsor Dynamic Duals every month! It is a group for families with a child with DS-ASD or other significant behavioral challenges. It’s a time to connect and have fun, share successes and resources, and brainstorm ideas and strategies for challenges.

Mom’s Take 5
This month, marvelous MADSS moms gathered together to catch up. We always love this time with fellow moms to enjoy appetizers and soft drinks. 

Parent’s Night Out This month’s Parent's Night Out was held at Oliver’s Public House! Parents, grandparents, adult siblings, and caregivers gathered for a fun evening of conversation and good eats.

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North Central

Beach Day North Central families enjoyed a family friendly, beach day at Jack Lake in August! We hung out at the beach, enjoyed yummy snacks, and caught up with each other over a beautiful summer day. Thanks to everyone who joined us!

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Sheboygan

Farm WI Discovery Center DSAW-Sheboygan families had an incredible day at the Farm Wisconsin Discovery Center this month! Kiddos of all ages and their parents enjoyed interactive exhibits, a birthing barn, and the local dairy farm!

Creating Inclusion Through Adaptive Technology

In June, DSAW held a webinar centered around creating successful inclusion through adaptive technology and modifications. Christi Kasa, Ph.D. hosted the webinar; Dr. Kasa is an Associate Professor for the Department of Teaching and Learning and the Director of the Office of Inclusive Services in the College of Education at the University of Colorado. She teaches both graduate and undergraduate classes focused on adaptive instruction and inclusivity schooling for children with disabilities.

In her years teaching, Dr. Kasa has found immense value in visual learning—A number of students absorb knowledge better when they can actually see what is happening. This type of learning can be implemented across all subjects through adaptive technology. For one, Kasa believes students with disabilities should be immersed among their peers rather than separated. Allowing those with disabilities to work together with other students can be beneficial for all parties involved. From there, the individuals can receive any needed technology or other modifications to best aid their learning. During the webinar, Dr. Kasa recommended different forms of adaptive technology, such as applications and online book readers that she has found beneficial through her time working with her students.

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Applications:

There are many iPad or other tablet apps that involves this idea of visual learning. Below are some apps that Dr. Kasa has seen work effectively with students:                                                    

1. Snap Type

With Snap Type, students can take pictures of documents through the app scanner and then be able to add text or other notes from their device. According to the app store, Snap Type was designed for kids and adults who struggle with their penmanship. The app provides an opportunity for students to better organize their thoughts.

2. Wet Dry Try

 The Wet Dry Try app allows students the ability to practice handwriting formations on a device. A tool that sets this program apart from other similar apps is the inclusion of a verbal handwriting coach. This ‘coach’ provides positive reinforcement and instant feedback on penmanship errors. The coach emphasizes the start, sequence, and directionality of all numbers and uppercase and lowercase letters. It is a great example of visual learning as students can see the correct way to form their writing and then try it on their own.

 3. Clicker Sentences

With Clicker Sentences, students are given a variety of words and are tasked to use all of them to create a simple sentence. Per the website: “Clicker Sentences will enable [students] to produce work they can be proud of while learning the key skills necessary for independent writing.”

 4. Voice Dream

Voice Dream is a text-to-speech application for students to express what they are thinking and feeling. Hearing words simultaneously while reading them is said to increase understanding and knowledge preservation. Text-to-speech programs, in general, are effective pieces of adaptive technology for individuals with disabilities to express their emotions.

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Dr. Kasa uses a variety of other applications in her classroom. Below is a list of her other recommendations:

• Clicker Connect https://www.cricksoft.com/us/clicker/ipad/clicker-connect

• Manipulatives http://www.brainingcamp.com/product/mobile.html

• Prizmo https://creaceed.com/prizmo

Online Book Readers:

Dr. Kasa additionally recommends a variety of book-related adaptive technologies. She believes that technology can be such a powerful aid for those learning to read. Read on below for some adaptive technologies that Dr. Kasa has found beneficial for many of her students:

1. High Noon Books

High Noon Books is a website specifically intended for students who are reading below the reading level for their grade. This program gives recommendations of books at each grade level for all interests and subjects. In each book, there is large emphasis on the most common words of the English language to increase exposure and chances of retaining their meaning.

2. Special Reads

Special Reads is a high-interest reading program for children and teens with developmental disabilities, such as Down syndrome. With this program, educators can purchase reading bundles that all include a variety of high-interest books, flash cards, textbooks, guides, and specific instructions for teaching. Per the website: “Our high interest books are designed to engage readers from first glance and move them quickly to success.”

3. Tar Heel Reader

Tar Heel Reader allows students to read other users’ easy-to-read book, as well as craft their own book! When doing so, users can use pictures from the websites’ online database, or they can upload their own to aid their storytelling.

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With technology constantly evolving, there are more opportunities than ever for adaptive and inclusive innovations to be implemented in society. Dr. Kasa’s recommendations provide only a glimpse of the possibilities that a student with disabilities can utilize to help learn and retain information. Thank you Dr. Kasa for these wonderful recommendations!

Looking Back on July 2019

Statewide

Dr. Skotko Grand Rounds Training & Parent Sessions DSAW along with our partners hosted Grand Rounds Trainings and Parents Sessions with Dr. Skotko around the state this month! We visited Milwaukee, La Crosse, and Madison where Dr. Skotko presented to parents on how to boost cognition in individuals with Down syndrome. Parents had the opportunity to hear insight and asks questions. Dr. Skotko also presented to pediatric residents, medical students, and genetic counseling students on how to deliver a Down syndrome diagnosis and the latest research on Down syndrome. Parents were able to hear insight and ask questions. Thank you to our partners: Madison Area Down syndrome Society, Children’s Hospital of Wisconsin, Waisman Center, and Gundersen Health System. A HUGE thank you to Dr. Skotko for spreading awareness and information to hundreds of medical professionals, parents, and caregivers!

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Milwaukee

Down Home BBQ It was a beautiful, sunny day for our Down Home BBQ! Families enjoyed delicious hot dogs, hamburgers, and barbeque chicken while kids played in the Splash Zone and bouncy house. Thank you to the band, Off The Grill for playing at our event

Summer Camp
This month, campers got to visit an alpaca farm, see the new Lion King in theatres, and meet a bunch of new critters during Captive Bred Specialties’ presentation! Some campers even were brave enough to have a snake rest on their shoulders!

Littles Story Time
Children ages 0-6 years old are welcome to join us for Story Time at the state office! Story time is a great way for your child to have a fun while making friends and learning.This month, our incredible self-advocate interns read to the littles! We meet on the first and third Thursday of the month. Let us know you’re coming!

Digitability Class Our Digitability class had another successful month in June! This winter, we launched this award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces. Our summer semester started on June 10th and is held Mondays and Wednesdays at TWO different locations! Learn more about the West Allis location here. Interested in the Eastside location? Click here!

Life Skills Bootcamp
In June, we built a little free library and stocked it with books. We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!

Coffee Club
Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.

Motor Skills Playgroup                                   
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Sign up to join us!

Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime. 

Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Stay tuned for next month’s activity! Sign up for Tween Club!

Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, July 12th!

DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.

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Chippewa Valley

Wings for All In July, DSAW-Chippewa Valley sponsored Wings for All EAU! This airport rehearsal program is designed specifically for individuals with Autism or other intellectual disabilities. Families were given the opportunity to practice all the steps involved in air travel at the Chippewa Valley Regional Airport. We had so much fun connecting with other families!

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La Crosse

Parent’s Night Out This month, parents, grandparents, caregivers, and adult siblings gathered at Senor Villa in Onalaska for a casual evening of food and conversation. Thanks to all who joined us!

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Fox Cities

Playdate Families gathered together for a playdate at Washington Park! We had so much fun meeting other families and enjoying the summer day.

Mom’s Night Out Moms, grandmas, and female caregivers of a loved one with Down syndrome had a blast at Mom’s Night Out this month at P.F. Chang’s! We enjoyed appetizers and good conversation with each other.

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Green Bay

Self-Advocate Mini Golf Event  In July, Self-advocates ages 15+ went mini-golfing. We were at Duck Creek Golf Course for a day of putting and the occasional hole-in-one. So much fun!

Playgroup 
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play outside at Voyageur Park in De Pere this month! Join us at Southwest Park in July.

Dad’s Night Out This month, dads enjoyed a night out at Twin Oaks Golf Course for a fun round of golf together!

Mom’s Night Out
The 4th Sunday of every month, moms, aunts, grandmas, and female caregivers come together for DSAW-Mom’s Night Out. In June, we dined at Rustique Pizzeria in Green Bay. Join us next month: RSVP Here!

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Central Wisconsin

Pool Party 
DSAW-Central WI families traveled to Rothschild Pool for a fun day of splashing in the water. Some of us even went down the big, blue slide! Perfect way to kickstart the summer! We also went to Rotschild Pool later in the month to beat the summer heat once again!

Sibling Event Kids who have a sibling with Down syndrome enjoyed a day at Sawmill Adventure Park. There, they were busy playing mini golf and jumping on the bounce house! Fees for the siblings were covered by DSAW.

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MADSS

Golf Outing MADSS had a successful Golf Outing this past month! The event took place at the Oaks Golf Course with 18 holes of golf and other fun games! The evening culminated in a dinner and program where raffle prizes were announced!

Rock County Family Picnic In July, MADSS hosted family picnic at Peace Park Pavilion. The day was spent eating, listening to music, creating crafts, and jumping in the pool. It was a great way to celebrate summer!

Dane County Family Picnic Dane County families enjoyed a family picnic at McKee Farms Park! We spent the day playing games, making crafts, eating yummy food, listening to great music, and jumping around in a bounce house!

Mom’s Night Out
This month, marvelous MADSS moms gathered at La Casa Grande! We always love this time to catch up with moms over appetizers and soft drinks. 

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North Central

Family Picnic North Central families had so much fun at a family friendly, summer picnic this month! Families headed to City Park for yummy food and running through the splash pad. Thank you to everyone who joined us for this day full of summer activities!

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Meet a DSAW Leader: Morgan

Hello DSAW friends and family, my name is Morgan Brzank and I am a board member for DSAW-COTH-La Crosse. I currently reside in La Crosse near UW-La Crosse but I am originally from New Berlin, WI (near Milwaukee). I am about to go into my senior year of college, studying with a major in Business Management and a minor in Healthcare Analytics with an emphasis in Human Resources (a mouthful, I know!).

I always say my path with DSAW is not only unique but one of my biggest blessings, and proves you never know what will open up doors and opportunities in your life. In high school, I was on my school’s dance team and one of our coaches asked me to help coach our communities Special Needs and Abilities Poms (SNAP) team. I fell in love with coaching these girls immediately and I also met my friend, Alexis Malloy while coaching that team. Here, her family asked me to become a supporter for Alexis where I got to help Alexis with things like work, respite, healthy habits, tutoring and so on. This experience also opened up the opportunity to learn about DSAW and I began volunteering there throughout high school (I still work for her remotely). Through Alexis, I met Dawn Nuoffer and the fabulous Abby.

Through all these opening doors, I made my way to becoming a board member for the La Crosse chapter when moving to La Crosse for college. I am now the Secretary for our board and I love helping out with the volunteers in our area, having a part in the DSAW walk, and getting involved with the Self-Advocates when I can. Last summer, I had the blessing of working at DSAW Headquarters as an intern – best summer ever! I even work for DSAW Family Services from time to time. DSAW and all the individuals with Down syndrome have changed my life and I am so honored to continue my work in this community. As I finish up my last year in college and look forward to new directions, I am excited to continue being a DSAW member for La Crosse and being involved in DSAW overall!

Meet a DSAW Leader: Intern Edition

Meet DSAW’s hard working Summer 2019 Interns! We couldn’t do the work we do without these amazing and passionate individuals. Read below to learn more about Ava, Brett, Lindsey, Mariah, and Michelle!

Ava Landmeyer, Social Work/Programming Intern:

My name is Ava Landmeyer and I am so excited to be interning with DSAW this summer! About 8 months ago, I began volunteering at DSAW’s Tween Nights after hearing about DSAW through the Breathe Respite Program a couple years back. I’ve always felt a pull towards working with individuals with special needs, and I’ve been lucky enough to learn just how much I love this type of work through a few different opportunities, such as working as an assistant Irish dance teacher, Best Buddies club, Breathe Respite, and now DSAW! It’s been such an amazing experience getting to know everyone at DSAW and getting more involved in some of their amazing programs. Besides working with DSAW and similar organizations, I also spend my time Irish dancing and working as a Certified Nursing Assistant.  I am so looking forward to the opportunity to work with DSAW and all of its fantastic members.

Brett Braza, Marketing & Communications Intern:

Hello! My name is Brett Braza and I am the Marketing & Communications Intern here at DSAW. Although I have only been working here for a year, I can say with confidence that this incredible organization has changed my life. I have been lucky enough to meet so many inspiring self-advocates, many of whom I would call my heroes. These self-advocates have proven that just because an individual has a disability does not mean they are limited in life—they are capable to do anything! I plan on bringing that perspective to school and throughout the rest of my life. Speaking of school, I just finished my freshman year at the University of Minnesota! I absolutely love the Twin Cities area and will be excited to be back up there again in August. I am studying Marketing and Non-Profit Management through the Carlson School of Management, two fields of study greatly inspired by my work with DSAW!  In my free time, I enjoy running, traveling Up North, and watching movies, specifically Pixar and Marvel movies! I am trying to improve my cooking skills this summer as I will be living in an apartment next year in the Twin Cities. But, that is a work in progress! I am so excited to be at DSAW for the summer!

Lindsey Clark, Social Work/Programming Intern:

Hi! My name is Lindsey Clark and I am a Social Work/Programming intern at DSAW in West Allis. I am currently a senior at Marquette University studying Social Welfare and Justice and Gender and Sexuality Studies. I am originally from Detroit but have loved living in Milwaukee these past three years. After I graduate, I plan on pursuing my Masters in Social Work and hope to work to support individuals and impact my community. I wanted to be involved with DSAW, not only to gain experience working with the programming of a non-profit, but also to join the strong community that advocates for the dignity of all individuals. Although I am only in my first month of interning here, I have quickly grown to love the people and mission of DSAW. In my time as a DSAW intern, I can't wait to learn, grow and become a part of this amazing community. 

Mariah Ganyo, Social Work/Programming Intern:

Hello! My name is Mariah Ganyo and I am apart of the programs internship at DSAW for the summer. I just graduated this spring from The University of Wisconsin- Stout with a bachelors of science degree in Human Development and Family Studies and a concentration in social work. I grew up in a suburb outside of the twin cities in MN and my next door neighbor who is one of my best friends is a person with Down syndrome. Him and many of his friends helped me find my passion for helping others. In my free time, i enjoy being outside, reading a book, out shopping with friends and family, or inside trying to cook a delicious recipe off of Pinterest. I am so happy to be apart of DSAW and can’t wait to get to know all of you!

Michelle Dieckelman, Nonprofit Management & Event Planning Intern:

Hi! My name is Michelle Dieckelman and I am the Nonprofit Management and Event Planning Intern for DSAW. I am a junior at UW-Madison, double majoring in communicative science & disorders and communication science & rhetorical studies. My career aspiration is to be a speech pathologist in the NICU. I am from a family of 5 – my parents, a brother, and a sister. At UW – Madison, I am involved with the Special Olympics of Wisconsin, Moment of Magic, and Badgers Give Back. All of these experiences have brought me down the path of working at DSAW. I participate in flag football and volleyball with the Special Olympics of Wisconsin and it has brought me so much joy and great friendships. With my Moment of Magic organization, I get to dress up as a female superhero and help children to feel “brave, strong, and fearless.” DSAW is a great organization and I am so fortunate to have the opportunity to work as an intern for the summer. I can already see the impact this organization has on the community and I cannot wait to be part of this amazing organization and team.

Looking Back on June 2019

Milwaukee

Brewers Outing
Take me out to the ball game! DSAW-families gathered for the BIGGEST TAILGATE of the year. There, we enjoyed a delicious lunch graciously donated by Just One More Ministries before heading into Miller Park for the Brewer’s Game! Thank you to all who could join us for this awesome event!

Summer Camp
Our summer-long camp began in mid-June. Campers learned about recycling, created posters about themselves, and even walked to Krispy Kreme’s to purchase delicious donuts! Week 2 was Everything Disney week, and we get to take a field trip to see Toy Story 4!!

Bike Camp
In June, DSAW once again partnered with the Autism Society of Southeastern Wisconsin to host the iCan Shine Bike Camp. The camp worked to help individuals with special needs learn to ride a two-wheeled bicycle independently.

New Summer Offerings
During June, DSAW launched new summer programs, including Littles Art Program, Life Skills & Laughter, and Safety & Self-Defense! We love having an office full of amazing friends of all ages! Click here to learn more or to sign-up!

Littles Story Time
Children ages 0-6 years old are welcome to join us for Story Time at the state office! Story time is a great way for your child to have a fun while making friends and learning.This month, our incredible self-advocate interns read to the littles! We meet on the first and third Thursday of the month. Let us know you’re coming!

Digitability Class Our Digitability class had another successful month in June! This winter, we launched this award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces. Our summer semester started on June 10th and is held Mondays and Wednesdays at TWO different locations! Learn more about the West Allis location here. Interested in the Eastside location? Click here!

Life Skills Bootcamp
In June, we built a little free library and stocked it with books. We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!

Coffee Club
Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.

Motor Skills Playgroup                                   
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Sign up to join us!

Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime. 

Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Stay tuned for next month’s activity! Sign up for Tween Club!

Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, July 12th!

DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.

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Sheboygan

Red, White, & Shine: Red Carpet Date Night
DSAW families and couples had a blast playing mini golf at our Red Carpet Date Night. The event was held at the Harbor Pointe Miniature Golf and proceeds went towards DSAW-Sheboygan! It was night full of countless memories and was the perfect way to kick off the Fourth of July festivities.

Dance Class
We finished up our Dance Class at In Motion Dance Studio in Plymouth this month! The goal of the class is to get the group moving, sweating, learning, and having fun. The class is taught by Heather Jankus, Elite Coach at In Motion Dance Studio.

Music Therapy
In partnership with Take Note Studio in Kohler, Kindermusik hosted a three-session music therapy class! Each week, DSAW children sang, danced, and played instruments with their parents and new friends! The class celebrated the unique joys of the children! 

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La Crosse

Bike Camp
The 2nd Annual Bike Camp for children with disabilities in La Crosse was held this month. Children enrolled in the camp were provided with instruction to ride a two-wheel bike by Adapted Physical Education Teachers and UW-La Crosse Adapted Physical Education students. We loved watching our friends learn how to bike independently!!

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Green Bay

Brat Fry Fundraiser
In June, the Green Bay chapter hosted a Brat Fry Fundraiser to support DSAW. We grilled some delicious brats outside of Festival Foods and had a blast while doing so! Thank you to all the volunteers who helped during this event!

Playgroup 
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play outside at Voyageur Park in De Pere this month! Join us at Southwest Park in July.

Mom’s Night Out
The 4th Sunday of every month, moms, aunts, grandmas, and female caregivers come together for DSAW-Mom’s Night Out. In June, we dined at Rustique Pizzeria in Green Bay. Join us next month: RSVP Here!

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Central Wisconsin

Pool Party 
DSAW-Central WI families traveled to Rothschild Pool for a fun day of splashing in the water. Some of us even went down the big, blue slide! Perfect way to kickstart the summer!

Picnic & Playdate 
In June, we gathered for a picnic and playdate at Kash Park. Families brought yummy summer foods to pass, while kids enjoyed playing with their friends on the playset. Thank you to all who were able to join in on the fun!

Wheels of Hope Cruz’n 4 Down Syndrome
Wheels of Hope hosted their 3rd Annual Cruz’n 4 Down Syndrome Event. 2-wheelers and 4-wheelers came from all over for a 100 mile ride. Along the way, there was food and prizes at five different spots. Thank you to the band Thunder Country for providing entertainment at the finish point!

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Fox Cities

Bike Camp In June, DSAW-Fox Cities offered the iCan Shine Bike Camp for individuals with special needs to learn to ride a two-wheeled bike independently. A huge thank you to Covey for partnering with us and to all the volunteers who ran, clapped, and encouraged riders!

Brewers Outing Fox Cities families made a fun bus trip down to Miller Park for the big DSAW tailgate and Brewers game! Kids and adults had a ton of fun catching up with other families over good food and fun.

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MADSS

Family Zoo Day & Ice Cream Social
The Family Zoo Day & Ice Cream Social was the perfect way for MADSS families to get together and start summer off on the right foot. Families got to explore the exhibits and see the animals at Henry Vilas Zoo before meeting outside for an ice cream social! MADSS provided the yummy ice cream and surplus of toppings!

Family Bowling Day
Strike! MADSS families had an awesome time on the lanes this month. There were two bowling events in June! One for Sauk and Columbia County, and another for Jefferson County! Thank you to all the families that could come on down!

Dynamic Duals: DS-ASD 
MADSS & GiGi’s Playhouse sponsor Dynamic Duals every month! It is a group for families with a child with DS-ASD or other significant behavioral challenges. It’s a time to connect and have fun, share successes and resources, and brainstorm ideas and strategies for challenges.

Mom’s Take 5
MADSS has a Mom’s Night Out on the 5th of every month! This month, marvelous MADSS moms gathered at Me & Julio in Fitchburg! We always love this time to catch up with moms over appetizers and soft drinks. 

Parent’s Night Out 
This month’s Parent's Night Out was held at Great Dane Pub & Brewing Company in Hilldale! Parents, grandparents, adult siblings, and caregivers gathered for a fun evening of conversation and good eats. 

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Looking Back on May 2019

Milwaukee

Club DSAW
Club DSAW celebrated Cinco de Mayo at the delicious Botana’s restaurant in Milwaukee. To say we enjoyed their Mexican cuisine is an understatement! It was delicious! Next month, Club DSAW spending the day at a family hobby farm! Join us!

Monkey Joe’s Party Kids had a ball bouncing, jumping, and laughing at our Monkey’s Joe Party! The morning was spent racing through obstacle courses, jumping in the bounce house, and sliding down the giant inflatable slide. Monkey Joe’s even opened an hour early just for us!

Digitability Class Our Digitability class had another successful month in May! This winter, we launched this award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces. Our summer semester starts up on June 10th, and will be held Mondays and Wednesdays at TWO different locations! Learn more about the West Allis location here. Interested in the Eastside location? Click here!

Life Skills Bootcamp
In May, we worked in the DSAW garden, prepping, planting, watering. We are excited to watch the plants grow all summer long! In June, we will be building a little free library and stocking it with books. Register Here!

Coffee Club

Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.

Motor Skills Playgroup                                   
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup! Sign up to join us!

Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime. 

Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At this month’s Tween Club we had peers from the Delafield Family Tae Kwon Do Champions come to teach us some tae kwon do! Stay tuned for next month’s activity! Sign up for Tween Club!

Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, June 14th!

DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.

Alzheimer’s Group Our Alzheimer’s group meets every third Tuesday of the month. All parents, caregivers, and family members who have a loved one with Down syndrome going through the aging process are invited to share and connect with others with similar stories. Click here to sign-up!

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Sheboygan

Alpaca Farm Tour

In May, DSAW-Sheboygan families traveled to the LondonDairy Alpaca Ranch. We got to have our own private tour of the ranch where we even got to feed and hang out with the alpacas. 

Sheboygan Dance Class

We continued our Dance Class at In Motion Dance Studio in Plymouth this month! The goal of the class is to get the group moving, sweating, learning, and having fun. The class is taught by Heather Jankus, Elite Coach at In Motion Dance Studio. There will be two sessions in June (6/9 and 6/23).

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La Crosse

Parent’s Night Out
This month, DSAW-COTH-GLA parents dined at Fiesta Mexicana for Parent’s Night Out. It provides the perfect opportunity for parents, grandparents, and caregivers to converse with other DSAW adults while enjoying delicious food. Hope you can join us for our next night out in July! RSVP here.

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Green Bay

Playgroup
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. Since the weather has been warming up, we got to play outside at Voyageur Park in De Pere this month!

Mom’s Night Out

The 4th Sunday of every month, moms, aunts, grandmas, and female caregivers come together for DSAW-Mom’s Night Out. In May, we dined at Old Mexico in Green Bay. Join us next month at the Rustique Pizzeria. RSVP Here!

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Chippewa Valley

Financial & Legal Planning Seminar

Parents gathered for a Financial and Legal Planning Seminar in May! Charles Zwiefelhofer, Financial Advisor at Woita & Associates and Nick Heike, owner of Heike Law Offices presented to us on financial and legal planning topics such as how to get started with a special needs trust, how to fund it, etc. We really enjoyed this time learning alongside fellow DSAW parents.

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Central Wisconsin

Wellness Club
This month, Wellness Club served as a perfect opportunity for teens and young adults to learn more about nutrition! Additionally, teens and young adults were able to get active through fitness activities! Thank you to our instructor, Dana, who taught our group about nutrition plans and fitness activities.

Mom’s Night Out
This month, moms, grandmas, and female caregivers gathered at Townies Grill in Wausau for a Mom’s Night Out. The night was filled with delicious food and fun conversation.

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MADSS

Self-Advocate Laser Tag Outing

This month, self-advocates were able to enjoy a FREE evening of laser tag at UltraZone. The self-advocates suited up in laser tag gear and were able to play multiple games in the arena. It was a night full of laughter, adventure, and some serious laser tag action!

Family Fun Night – Coral Cove Family Fun Center 

We had a blast at Coral Cove Family Fun Center for our Family Fun Night! MADSS families were able to bowl, play in the arcade, jump in the bouncy house, relax in the massage chairs, and much more! They were even able to enjoy a catered meal from Bravo’s! 

Dynamic Duals: DS-ASD 

MADSS & GiGi’s Playhouse sponsor Dynamic Duals every month! It is a group for families with a child with DS-ASD or other significant behavioral challenges. It’s a time to connect and have fun, share successes and resources, brainstorm ideas and strategies for challenges.

Mom’s Take 5
MADSS has a Mom’s Night Out on the 5th of every month! This month, marvelous MADSS moms gathered at Tanner’s Bar & Grill in Middleton! We always love this time to catch up with moms over appetizers and soft drinks. 

Parent’s Night Out 
This month’s Parent's Night Out was held at Breakwater in Monona! Parents, grandparents, adult siblings, and caregivers gathered for a fun evening of conversation and good eats. 

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Fox Cities

FrienDS Club

We had fun at this month’s FrienDS Club. Teens had fun playing games together, listening to music together, and watching movies together. We will be taking a break from FrienDS Club over the summer, but we’ll be back when September rolls around. 

Mom’s Night Out

We spent this Mom’s Night Out at one of Appleton’s highly rated newer restaurants—Wilder’s Bistro. Mom’s Night Out is for moms, aunts, grandmothers, and caregivers of a loved one with Down syndrome.

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Meet a DSAW Leader: Garrett

Hello! My name is Garrett Lancelle and I am a DSAW-Central Wisconsin Board Member. I am also a proud husband and father to three wonderful children (JJ (1), Isabelle (4), and Gavin (6). I am also a sibling to Max, Katie, and Joe and son to Paul and Nancy. I have worked as a special education teacher for the last 9 years throughout Central Wisconsin (Edgar, D.C. Everest, and Wausau School District). My family and I reside in Weston, Wisconsin. 

My journey to DSAW stemmed from being a part of a family who lived by the motto of "putting the FUN in DYSFUNCTIONAL". More than that I lived in a family of love.

My siblings, Max and Katie, have Down Syndrome. My parents were amazing advocates. My brother Joe and I can attest that we are the people we are today due to being the siblings of Max and Katie. Max and Katie helped us to understand how to conquer fears, fight through adversity, and fight through the most difficult of task that life presents.   

My experiences as a sibling, son, and special educator have led me to being a part of DSAW. I have seen the impact our community has on families and look forward to our growth in the future!