Where to Start: Resources

The Down Syndrome Clinic is committed to improving the health and well being of children and adults with Down syndrome, which may include complex issues. This requires a comprehensive, multidisciplinary health care approach. The DSCW is connected with a statewide network to assist families in need.


Birth to Three


Birth to Three is Wisconsin’s early intervention program for infants and toddlers with developmental delays and disabilities. Through it, your child will receive (in most cases) in-home physical, occupational and speech therapy depending on his or her needs, often at little-to-no cost to your family. 


DSAW Parent’s First Call

For new and expectant parents of babies with Down syndrome, we offer up-to-date resources (Expectant Parent Packs and New Parent Welcome Baskets), and the opportunity to connect with other parents who have had similar experiences.



Katie Beckett Program Supplemental Insurance 


Children born with DS often experience medical complications at birth, many of which today are corrected with routine procedures. In addition, children with DS will benefit from physical, occupational and speech therapy in their first months and years. The Katie Beckett Medicaid program can cover costs that insurance plans sometimes will not.


Family Support Program 


The Family Support Program offers in-home support for families with children who have severe disabilities. It also offers information and help in finding service programs and community resources, some funding to purchase necessary goods and services unavailable elsewhere and links to other families to build a support network.



DSAW Member Grants and DSAW Meal Assistance Program

DSAW offers Member Grants for DSAW Members to help offset the cost of items or services that can benefit the quality of life and development of a person with Down syndrome. In addition, for families who are experiencing an extended hospital stay at Children’s Hospital of Wisconsin in Milwaukee, we offer meal vouchers for family members


Wisconsin First Step 

The mission of Wisconsin First Step is to assist parents in finding resources for their children with special needs. They serve children and youth from birth to age 21 who have physical, cognitive, or mental health challenges.





The mission of WI FACETS is to provide and broaden opportunities that enhance the quality of life for children and adults with disabilities and their families, with emphasis on support for underserved families in the community.


Other Resources

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DSAW has a large collection of international, national, and Wisconsin-specific resources on a variety of topics related to Down syndrome. To learn more, visit our website.



National Down Syndrome Society

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The National Down Syndrome Society (NDSS) is the leading human rights organization for all individuals with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.


National Down Syndrome Congress

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The mission of the National Down Syndrome Congress (NDSC) is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.


Global Down Syndrome Foundation

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The goal of the Global Down Syndrome Foundation is to significantly improve the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. Global works to educate governments, educational organizations and society in order to affect legislative and social changes so that every person with Down syndrome has an equitable chance at a satisfying life.



Wisconsin Upside Down


Wisconsin Upside Down is dedicated to enhancing the lives of individuals with Down syndrome. The mission of Wisconsin Upside Down is to offer Down syndrome Advocacy, Education, Awareness and Support to families of individuals with Down syndrome and the community.


Madison Area Down Syndrome Society


The mission of the Madison Area Down Syndrome Society, Inc. is to provide support to individuals with Down syndrome and their families while advancing awareness, respect and opportunity.


GiGi’s Playhouse


GiGi’s Playhouse Down Syndrome Achievement Center’s mission is to change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community. There are playhouses located in Milwaukee and Madison.


Gettin’ Down Central WI


Gettin’ Down Central WI’s goal is to educate and bring families and the community together to learn acceptance and communicate knowledge. They make new friends, while providing support, sharing resources and information.